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首页> 外文期刊>American journal of medical genetics, Part A >An interactive computer program can effectively educate potential users of cystic fibrosis carrier tests.
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An interactive computer program can effectively educate potential users of cystic fibrosis carrier tests.

机译：交互式计算机程序可以有效地教育潜在的囊性纤维化携带者检测用户。

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The demand for cystic fibrosis (CF) carrier testing is steadily growing, not only from individuals with raised a priori carrier risk, but also from the general population. This trend will likely exceed the availability of genetic counselors, making it impossible to provide standard face-to-face genetic counseling to all those asking for the test. In order to reduce the time needed to educate individuals on the basics of the disease, its genetic transmission, and carrier testing peculiarities, we developed an educational method based on an interactive computer program (IC). To assess the effectiveness of this program and to compare it to a classical genetic counseling session, we conducted a comparative trial. In a population setting of people undergoing assisted reproduction, 44 individuals were randomly assigned to either receiving standard one-on-one genetic counseling or education by the IC program. We measured pre- and post-intervention knowledge about CF genetic transmission and carrier testing. Starting from an equivalent baseline of correct answers to a specially designed multiple-choice questionnaire (47% in the counselor group and 45% in the computer group) both groups showed a highly significant and similar increase (reaching 84% in the counselor group and 85% in the computer group). The computer program under evaluation can successfully educate individuals considering genetic testing for CF. (c) 2011 Wiley-Liss, Inc.
机译：囊性纤维化（CF）携带者测试的需求稳步增长，不仅来自先验携带者风险增加的个人，而且来自整个人群。这种趋势可能会超出遗传咨询师的供应范围，从而不可能为所有要求进行测试的人提供标准的面对面遗传咨询。为了减少对个人进行疾病基本知识，其遗传传播和携带者测试特性的教育所需的时间，我们开发了一种基于交互式计算机程序（IC）的教育方法。为了评估该计划的有效性并将其与经典的遗传咨询会议进行比较，我们进行了一项比较试验。在人群中进行辅助生殖的人群中，有44个人被随机分配到接受IC程序的标准一对一遗传咨询或教育。我们测量了干预前后有关CF基因传播和携带者检测的知识。从对特别设计的多项选择问卷的正确答案的等效基线开始（辅导员组为47％，计算机组为45％），两组均显示出非常显着且相似的增长（辅导员组达到84％，而咨询组达到85 ％在计算机组中）。被评估的计算机程序可以成功地教育考虑进行CF基因测试的个人。 （c）2011 Wiley-Liss，Inc.

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