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首页> 外文期刊>South African Journal of Physiotherapy >The effect of the Hambisela programme on stress levels and quality of life of primary caregivers of children with cerebral palsy: A pilot study
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The effect of the Hambisela programme on stress levels and quality of life of primary caregivers of children with cerebral palsy: A pilot study

机译：Hambisela程序对脑瘫儿童初级护理人员的压力水平和生活质量的影响：一项初步研究

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Background: ?Caregivers of children with cerebral palsy (CP) are at risk of having high stress levels and poor quality of life (QOL) which could have a detrimental effect on themselves and their children. Taking caregivers’ well-being into consideration is therefore important when providing rehabilitation to children with CP. Interventions to mediate primary caregiver stress and QOL using an educational tool have not been tested in this population in South Africa. Objectives: ?The aim of this study was to determine the effect of a group-based educational intervention, Hambisela, on stress levels and QOL of primary caregivers of children with CP in Mamelodi, a township in Gauteng, South Africa. Method: ?Eighteen primary caregivers of children with CP participated in a quasi-experimental pretest–post-test pilot study. Hambisela, a group-based educational intervention, was carried out once a week over 8 consecutive weeks. Caregiver stress and QOL were assessed before and after the intervention using the Parenting Stress Index-Short Form (PSI-SF) and the Paediatric Quality of Life-Family Impact Module (PedsQL TM -FIM). Sociodemographic information was assessed using a demographic questionnaire. The Gross Motor Function Classification System (GMFCS) was used to assess the gross motor level of severity of CP in the children. Results: ?Data were collected for 18 participants at baseline and 16 participants at follow-up. At baseline, 14 (87.5%) participants had clinically significant stress which reduced to 11 (68.8%) at follow-up. There was no significant change in primary caregiver’s stress levels ( p ?= 0.72) and QOL ( p ?= 0.85) after the Hambisela programme. Higher levels of education were moderately associated with lower levels of primary caregiver stress ( r ?= ?0.50;? p ?= 0.03). Conclusion: ?Most primary caregivers in this pilot study suffered from clinically significant stress levels. Hambisela, as an educational intervention, was not effective in reducing the stress or improving the QOL in these primary caregivers of children with CP. Future studies with a larger sample size are needed to investigate the high stress levels of primary caregivers of children with CP. Clinical implications: ?Rehabilitation services for children with disabilities should include assessments to identify caregivers with high stress levels. Holistic management programmes should also include care for the carers.
机译：背景：？患有脑瘫（CP）的儿童的照护者有承受高压力水平和较差生活质量（QOL）的风险，这可能会对他们自己和他们的孩子造成不利影响。因此，在为患有CP的孩子提供康复服务时，考虑到照顾者的健康就很重要。尚未在南非的该人群中测试使用教育工具介导初级护理人员压力和生活质量的干预措施。目的：这项研究的目的是确定基于小组的教育干预措施Hambisela对南非Gauteng镇Mamelodi的CP儿童的主要照护者的压力水平和QOL的影响。方法：18名患有CP的儿童的主要照顾者参加了一项准实验性的试验前-试验后试验研究。 Hambisela是一项基于团体的教育干预措施，连续8周每周进行一次。干预前后，使用父母压力指数-简表（PSI-SF）和儿童生活质量家庭影响模块（PedsQL TM -FIM）评估照顾者的压力和生活质量。使用人口统计学问卷评估了社会人口统计学信息。大运动功能分类系统（GMFCS）用于评估儿童CP严重程度的大运动水平。结果：在基线时收集了18名参与者的数据，在随访时收集了16名参与者的数据。基线时，有14名（87.5％）参与者具有临床上显着的压力，在随访时减少至11名（68.8％）。 Hambisela计划实施后，主要护理人员的压力水平（p = 0.72）和QOL（p = 0.85）均无明显变化。较高的教育水平与较低的初级照料者压力适度相关（r == 0.50; p = 0.03）。结论：这项初步研究中的大多数主要护理人员都具有临床上显着的应激水平。 Hambisela作为一种教育干预措施，在减轻CP儿童的这些主要照护者的压力或改善其QOL方面无效。需要进行更大样本量的未来研究，以调查CP儿童的主要照顾者的高应激水平。临床意义：？残疾儿童的康复服务应包括评估，以识别压力很大的看护人。整体管理计划还应包括照顾者。

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