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Involving patients in quality indicator development – a systematic review

机译：让患者参与质量指标开发–系统的审查

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Background: Quality indicators (QI) are used in many health care areas to measure, compare, and improve the quality of care. Ideas of quality differ between health care providers and patients, yet patients are not regularly involved in QI development nor does a methodological standard for patient involvement in QI development exist. In this study we systematically reviewed the medical journal articles and gray literature for published approaches for involving patients in QI development. Methods: We searched medical literature databases (Medline, Excerpta Medica database, and Cumulative Index to Nursing and Allied Health Literature), screened websites, and contacted experts in the field of QI development for publications on approaches to patient involvement in QI development. Results: Eleven relevant journal articles and four web-published documents were included. Four major approaches to patient involvement were extracted from the literature: (1) focus group interviews, (2) self-administered questionnaires, (3) individual interviews, and (4) participation in panels during systematic consensus processes. Patients' views were collected by involving patients, patient representatives, or family members. Conclusion: Although there is a large body of literature on QI, publications that describe approaches to patient involvement in QI development are scarce. In principle, indirect and direct methods of patient involvement can be distinguished, and it seems most promising to combine different approaches. However, the limited number of publications identified clearly shows that further research in this field is overdue and that the quality of reporting found in studies within this field needs to be improved.
机译：背景：许多医疗领域都使用质量指标（QI）来衡量，比较和改善护理质量。卫生保健提供者和患者之间的质量观念不同，但是患者并未定期参与QI的发展，也不存在用于患者参与QI的方法学标准。在这项研究中，我们系统地审查了医学期刊文章和灰色文献，以了解使患者参与QI发展的已发表方法。方法：我们搜索了医学文献数据库（Medline，Excerpta Medica数据库以及护理和专职健康文献累积索引），筛选了网站，并联系了QI开发领域的专家以获取有关患者参与QI开发方法的出版物。结果：包括11篇相关期刊文章和4篇网络发布的文档。从文献中提取了四种主要的患者参与方法：（1）焦点小组访谈，（2）自我管理的问卷，（3）个人访谈和（4）在系统的共识过程中参加小组讨论。通过让患者，患者代表或家庭成员参与收集患者的观点。结论：尽管有大量关于QI的文献，但很少有描述患者参与QI发展方法的出版物。原则上，可以区分患者参与的间接和直接方法，并且似乎最有希望组合不同方法的方法。但是，所确定的出版物数量有限，清楚地表明，该领域的进一步研究已经过期，并且需要提高该领域研究报告的质量。

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