• 主题
高级搜索  >
历史搜索 清空历史
首页> 外文期刊>Pulmonary Circulation >Physician Attitudes toward Palliative Care for Patients with Pulmonary Arterial Hypertension: Results of a Cross-Sectional Survey:
【24h】

Physician Attitudes toward Palliative Care for Patients with Pulmonary Arterial Hypertension: Results of a Cross-Sectional Survey:

机译：医生对肺动脉高压患者姑息治疗的态度：跨部门调查的结果：

获取原文
           
页面导航
  • 摘要
  • 著录项
  • 相似文献
  • 相关主题

摘要

Pulmonary arterial hypertension (PAH) is a chronic, symptomatic, life-threatening illness; however, it is complex, with variable expression regarding impact on quality of life (QOL). This study investigated attitudes and comfort of physicians regarding palliative care (PC) for patients with PAH and explored potential barriers to PC in PAH. An internet-based, mixed-methods survey was distributed to Pulmonary Hypertension Clinicians and Researchers, a professional organization within the Pulmonary Hypertension Association. Only responses from physicians involved in clinical care of patients with PAH were analyzed. Of 355 clinicians/researchers, 79 (22%) returned surveys, including 76 (21%) providers involved in clinical care. Responding physicians were mainly pulmonologists (67%), practiced in university/academic medical centers (89%), had been in practice a mean of 12 ± 7 years, cared for a median of 100 PAH patients per year, and reported a high level of confidence in managing PAH (87%), advanced PAH-specific pharmacologic interventions (95%), and end-of-life care (88%). Smaller proportions were comfortable managing pain (62%) and QOL issues (78%). Most physicians (91%) reported utilizing PC consultation at least once in the prior year, primarily in the setting of end-of-life/active dying (59%), hospice referral (46%), or symptomatic dyspnea/impaired QOL (40%). The most frequent reasons for not referring patients to PC included nonapproval by the patient/family (51%) and concern that PC is “giving up hope” (43%). PAH may result in symptoms that impair QOL despite optimal PAH therapy; however, PC awareness and utilization for PAH providers is low. Opportunities may exist to integrate PC into care for PAH patients.
机译：肺动脉高压（PAH）是一种慢性，有症状的，威胁生命的疾病;但是，它是复杂的，具有对生活质量（QOL）的影响的可变表达。这项研究调查了医生对PAH患者的姑息治疗（PC）的态度和舒适度，并探讨了PAH中PC的潜在障碍。一项基于互联网的混合方法调查问卷已分发给肺动脉高压协会的专业组织肺动脉高压临床医生和研究人员。仅分析了参与PAH患者临床护理的医师的回应。在355位临床医生/研究人员中，有79位（22％）返回了调查，其中包括76位（21％）的临床护理提供者。回应的医生主要是肺病学家（67％），曾在大学/学术医疗中心执业（89％），平均执业时间为12±7年，每年平均护理100名PAH患者，并且报告的水平很高管理PAH的信心（87％），针对PAH的高级药理干预措施（95％）和临终护理（88％）。较小比例的人感到疼痛缓解（62％）和生活质量问题（78％）感到自在。大多数医生（91％）表示，在去年至少使用过一次PC咨询，主要是在临终/活动性死亡（59％），临终关怀转诊（46％）或有症状的呼吸困难/ QOL受损（ 40％）。不推荐患者使用PC的最常见原因包括患者/家人未批准（51％），以及担心PC在“放弃希望”（43％）。尽管进行了最佳的PAH治疗，但PAH可能会导致症状损害QOL。但是，PAH提供商对PC的了解和利用率较低。可能存在将PC整合到PAH患者护理中的机会。

著录项

相似文献

  • 外文文献
  • 中文文献
  • 专利
获取原文

客服邮箱：kefu@zhangqiaokeyan.com

京公网安备：11010802029741号 ICP备案号：京ICP备15016152号-6 六维联合信息科技 (北京) 有限公司©版权所有

  • 客服微信

  • 服务号