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首页> 外文期刊>Food Science & Nutrition >Improving nutritional status of children with Cerebral palsy: a qualitative study of caregiver experiences and community‐based training in Ghana
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Improving nutritional status of children with Cerebral palsy: a qualitative study of caregiver experiences and community‐based training in Ghana

机译：提高脑瘫儿童的营养状况：加纳的照顾者体验与社区培训的定性研究

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Background Cerebral palsy (CP) is the most common childhood disability worldwide, and evidence shows that children with CP are at an increased risk of malnutrition due to feeding difficulties. This qualitative study explores caregiver experiences of feeding before and after a community‐based training program in Ghana. Methods Thirteen caregivers of children with CP, who were severely undernourished, were interviewed at the start of the training program. Eleven of these were interviewed again after a year of monthly group trainings and home visits, which included guidance on feeding. Four additional caregivers were interviewed at end line. Interviews explored caregivers’ mealtime experiences, as well as a 24‐hr dietary recall and a structured feeding observation checklist. Children's nutritional status was assessed by anthropometry. Results Caregivers found mealtimes stressful due to time demands, messiness, and the pressure of providing enough quality food. They felt that the training program had helped reduced this stress and dietary recall data suggested some improved dietary quality. However, there was neither improvement nor deterioration in anthropometric status of the children. Conclusion Group trainings were welcomed by caregivers and notably reduced stress around feeding times. However, future work is needed in order to improve anthropometric outcomes, including, but not limited to, greater focus on nutritional requirements during caregiver training interventions. Therapeutic feeding programs must also be better utilized and need to be better equipped to care for this group of children, including deviating from standard admission and treatment protocols.
机译：背景技术脑瘫（CP）是全球最常见的儿童残疾，并且证据表明，由于喂养困难，CP的儿童营养不良的风险增加。这种定性研究探索了在加纳社区培训计划之前和之后喂养的护理人员。方法在培训计划的开始，接受了一名患有CP的CP的儿童的13名护理人员。在每月集团培训和家庭访问的一年后再次采访了11次，其中包括饲养的指导。在结束线上采访了四名额外的护理人员。采访探索了护理人员的餐饮时间体验，以及24小时饮食召回和结构化饲养观察清单。人类学评估儿童的营养状况。结果护理人员由于需求，混乱和提供足够的优质食物的压力，发现餐点压力。他们觉得培训计划有助于减少这种压力，饮食召回数据表明一些改善的饮食质量。然而，儿童的人类测量状态既没有改善也没有恶化。结论小组培训受到照顾者的欢迎，并围绕喂食时间的应力降低。然而，需要未来的工作，以改善人体计量结果，包括但不限于，在护理人员培训干预期间更加注重营养需求。疗养饲养方案也必须更好地使用，并且需要更好地照顾这群儿童，包括偏离标准入学和治疗方案。

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