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Patient-Generated Health Data: Dimensions, Challenges, and Open Questions

机译:患者生成的健康数据:维度,挑战和未解决的问题

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In this review, we present an overview of patient-generated health data (PGHD) research, focusing on important aspects that inform and define studies in the area. We start by exploring a fundamental question: what is patient-generated health data? We list the main terms and definitions identified from previous research and generate a set of seven key dimensions for understanding PGHD: (1) the health focus of the study, (2) the type of data, (3) who proposes the use of PGHD, (4) whose data are collected, (5) who are the intended users, (6) how PGHD is collected and used, and (7) the duration of PGHD use. We describe these dimensions and discuss their importance to research PGHD. We then present a discussion of the impact of PGHD and related practices in people's lives and the debates concerning the consequences, both positive and negative, that may arise.
机译:在本文中,我们概述了患者生成的健康数据(PGHD)研究,重点是为该领域的研究提供信息和定义重要方面。我们首先探讨一个基本问题:什么是患者生成的健康数据?我们列出了先前研究中确定的主要术语和定义,并生成了七个了解PGHD的关键维度:(1)研究的健康重点,(2)数据类型,(3)提出使用PGHD的人,(4)收集其数据,(5)预期用户,(6)PGHD的收集和使用方式以及(7)PGHD的使用期限。我们描述了这些方面,并讨论了它们对研究PGHD的重要性。然后,我们讨论PGHD和相关实践对人们生活的影响,并就可能产生的正面和负面影响进行辩论。

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