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首页> 外文期刊>Journal of Autism and Developmental Disorders >Assessing Need for Social Support in Parents of Children with Autism and Down Syndrome
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Assessing Need for Social Support in Parents of Children with Autism and Down Syndrome

机译：评估自闭症和唐氏综合症患儿父母的社会支持需求

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摘要

Parents of children with autism frequently turn to the service delivery system to access supports designed to help adapt to the challenges of having a child with a life-long impairment. Although studies have suggested various supports and coping strategies that are effective for adapting, few studies have examined parents’ own perceptions of needs, and whether parents felt their needs were being met. In the present study the Family Needs Questionnaire (FNQ; Waaland et al., 1993) was modified to address needs for children with developmental disorders. A sample of fifty-six parents of children with autism and a comparison group of thirty-two parents of children with Down syndrome completed the FNQ. The groups did not differ significantly on the number of important needs reported nor the number of important needs being met. However, the two groups differed in the types of supports they most frequently endorsed as Important or Unmet.
机译：自闭症儿童的父母经常转向服务提供系统，以获取旨在帮助适应生下终生障碍儿童的挑战的支持。尽管研究提出了各种有效的适应方法和支持方法，但很少有研究检查父母对需求的看法以及父母是否满足了他们的需求。在本研究中，对家庭需求调查表（FNQ； Waland等，1993）进行了修改，以解决发育障碍儿童的需求。对56名自闭症儿童父母的样本和32名唐氏综合症儿童父母的比较组完成了FNQ。两组在报告的重要需求数量或满足的重要需求数量上没有显着差异。但是，这两个小组在最常被认可为“重要”或“未满足”的支持类型上有所不同。

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