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Is consent for research genuinely informed? Using decision aid tools to obtain informed consent in the global south

机译:是否真正知情同意进行研究?使用决策辅助工具在全球南方获得知情同意

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Gaining informed consent among marginalized groups that include decisionally incapacitated individuals and those outside of the researcher's own geo-social and ethnic background still challenges many researchers. We suggest that there is a need for consideration of a different approach to research ethics in international settings. Based on extensive field work in West Africa on medical knowledge transfers and patient-healer relationships, this paper will discuss the challenges posed in obtaining informed individual consent in international settings. It is argued that while being on the whole convincing, the top-down approach of the proposed solutions, which clearly dominates the participative approach, fails in building sustainable capacity, decision-making competency, and empowerment in the communities in which the research is conducted. Using appropriate decision aids can help resolve these issues.View full textDownload full textKeywordsinformed consent, individual consent, knowledge transfer, decision aid, competencyRelated var addthis_config = { ui_cobrand: "Taylor & Francis Online", services_compact: "citeulike,netvibes,twitter,technorati,delicious,linkedin,facebook,stumbleupon,digg,google,more", pubid: "ra-4dff56cd6bb1830b" }; Add to shortlist Link Permalink http://dx.doi.org/10.1080/17449626.2011.591817
机译:在边缘化群体中获得知情同意,其中包括决定性的无行为能力的人以及研究人员自身的地缘社会和种族背景之外的人,仍然挑战着许多研究人员。我们建议有必要考虑在国际环境中采用不同的研究伦理学方法。基于西非在医学知识转移和医患关系方面的广泛实地研究,本文将讨论在国际环境中获得知情的个人同意所面临的挑战。有人认为,虽然总体上令人信服,但拟议解决方案的自上而下的方法显然主导了参与性方法,但未能在进行研究的社区中建立可持续的能力,决策能力和增强能力。使用适当的决策辅助工具可以帮助解决这些问题。 ,delicious,linkedin,facebook,stumbleupon,digg,google,more“,发布号:” ra-4dff56cd6bb1830b“};添加到候选列表链接永久链接http://dx.doi.org/10.1080/17449626.2011.591817

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