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首页> 外文期刊>Psychology & Health >Banking on brains: Insights of brain donor relatives and friends from an experiential perspective
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Banking on brains: Insights of brain donor relatives and friends from an experiential perspective

机译：依靠大脑：以经验的角度洞察大脑捐赠者的亲戚和朋友

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Brain donation is critical to understand the pathological causes of neurodegenerative diseases. Increasing levels of donation requires an understanding of those factors that both encourage and deter donation. At present, there are few studies of how people understand, feel and decide about brain donation for scientific research. This qualitative experiential study contributes to the growing literature on brain donation through its specific focus on how the donation process is experienced from the perspectives of family members and friends. Nineteen semi-structured interviews were analysed using a phenomenologically informed thematic analysis. Four themes were derived from the analysis, three of which are described in detail: Making the decision to donate; a personal perspective on the donation process; the significance of the brain; beliefs about brain donation. In particular, the thematic analysis highlights the variation of individual decision making and the emotions and reasons underpinning such decisions. Key conclusions include the importance of integrated practice amongst relevant healthcare professionals as well as the need for supportive and informed communication. Also, in light of the finding that the brain assumed no special significance for most participants, the value of the distinction between brain donation for research purposes and organ transplantation is questioned.View full textDownload full textKeywordsbrain donation, emotions, experiential, decision making, thematic analysisRelated var addthis_config = { ui_cobrand: "Taylor & Francis Online", services_compact: "citeulike,netvibes,twitter,technorati,delicious,linkedin,facebook,stumbleupon,digg,google,more", pubid: "ra-4dff56cd6bb1830b" }; Add to shortlist Link Permalink http://dx.doi.org/10.1080/08870446.2012.669480
机译：脑捐赠对于了解神经退行性疾病的病理原因至关重要。捐赠水平的提高要求对鼓励和阻止捐赠的因素有所了解。当前，关于人们如何理解，感觉和决定科学研究的大脑捐赠的研究很少。这项定性的经验研究通过从家庭成员和朋友的角度特别关注捐赠过程的体验方式，为不断增长的关于大脑捐赠的文献做出了贡献。使用现象学上获知的主题分析对19个半结构化访谈进行了分析。分析得出了四个主题，其中详细描述了三个：做出捐赠决定；对捐赠过程的个人看法；大脑的重要性；关于大脑捐赠的信念。特别是，主题分析突出了个人决策的变化以及支撑此类决策的情感和原因。主要结论包括相关医疗保健专业人员之间进行综合实践的重要性以及支持和知情交流的必要性。同样，鉴于发现大脑对大多数参与者没有特殊意义，人们质疑将大脑捐赠用于研究目的和器官移植之间的区别价值。查看全文下载全文关键词大脑捐赠，情感，体验，决策，主题analysisRelated var addthis_config = {ui_cobrand：“泰勒和弗朗西斯在线”，services_compact：“ citeulike，netvibes，twitter，technorati，delicious，linkedin，facebook，stumbleupon，digg，google，more”，pubid：“ ra-4dff56cd6bb1830b”};添加到候选列表链接永久链接http://dx.doi.org/10.1080/08870446.2012.669480

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