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首页> 外文期刊>Quality of Life Research >Health-related Quality of Life in Children and Adolescents after Invasive Treatment for Congenital Heart Disease
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Health-related Quality of Life in Children and Adolescents after Invasive Treatment for Congenital Heart Disease

机译：先天性心脏病的侵入性治疗后儿童和青少年的健康相关生活质量

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摘要

Since the 1980s treatment techniques for congenital heart disease (ConHD) have gradually evolved. Therefore, actual information on the outcomes, including quality of life is required. Health-related quality of life was assessed long-term in four diagnostic groups of children, who underwent invasive treatment for ConHD between 1990 and 1995. The scores on the TNO-AZL Child Quality of Life Questionnaire (TACQOL) of both children with ConHD and their parents were compared with those of a same-aged reference group. The total sample of ConHD children (n = 113, 8–15 years old) obtained significantly lower mean scores on motor functioning, cognitive functioning, and positive emotional functioning than reference peers, reflecting an experience of poorer functioning. ConHD children, aged 8–11 years, obtained lower mean scores on 5 of the 7 TACQOL scales than reference peers. They also had a lower score on positive emotional functioning than 12- to 15-year-old ConHD children. The total sample of ConHD children obtained lower outcomes compared to their parents on 4 of the 7 TACQOL scales. No significant differences were found in health-related quality of life between ConHD boys and girls, neither between different diagnostic groups. Overall, this sample of recently treated ConHD children showed a worse health-related quality of life compared to reference groups. These findings deserve further attention.
机译：自1980年代以来，先天性心脏病（ConHD）的治疗技术已逐步发展。因此，需要有关结果的实际信息，包括生活质量。在1990年至1995年之间对ConHD进行了侵入性治疗的四个诊断儿童中，长期评估了与健康相关的生活质量。THD-AZL儿童和ConHD儿童的生活质量问卷（TACQOL）得分他们的父母与同龄参考人群的父母进行了比较。 ConHD儿童（n = 113，8-15岁）的总样本在运动功能，认知功能和积极的情绪功能方面的平均得分明显低于参考同龄人，反映出功能较差的经历。 8-11岁的ConHD儿童在7个TACQOL量表中有5个的平均得分低于参考同龄人。与12至15岁的ConHD儿童相比，他们在积极的情绪功能上得分也更低。在7个TACQOL量表中的4个量表上，ConHD儿童的总样本比其父母的结果要低。 ConHD男孩和女孩在健康相关生活质量上没有发现显着差异，不同诊断组之间也没有发现显着差异。总体而言，与参考组相比，最近接受治疗的ConHD儿童样本显示出与健康相关的生活质量较差。这些发现值得进一步关注。

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  • 来源
    《Quality of Life Research》 |2006年第4期|663-673|共11页
  • 作者

    A. W. Spijkerboer; E. M. W. J. Utens; W. B. De Koning; A. J. J. C. Bogers; W. A. Helbing; F. C. Verhulst;

  • 作者单位

    Department of Child ampamp Adolescent Psychiatry Erasmus Medical Centre – Sophia Children’s Hospital P.O. Box 2060 3000 CB Rotterdam The Netherlands;

    Department of Child ampamp Adolescent Psychiatry Erasmus Medical Centre – Sophia Children’s Hospital P.O. Box 2060 3000 CB Rotterdam The Netherlands;

    Department of Paediatric Cardiology Erasmus Medical Centre Rotterdam The Netherlands;

    Department of Cardiothoracic Surgery Erasmus Medical Centre Rotterdam The Netherlands;

    Department of Paediatric Cardiology Erasmus Medical Centre Rotterdam The Netherlands;

    Department of Child ampamp Adolescent Psychiatry Erasmus Medical Centre – Sophia Children’s Hospital P.O. Box 2060 3000 CB Rotterdam The Netherlands;

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  • 原文格式 PDF
  • 正文语种 eng
  • 中图分类
  • 关键词

    Children; Congenital heart disease; Parents; Psychology; Quality of life;

    机译：儿童;先天性心脏病;父母;心理;生活质量;

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