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Early diagnostics and Alzheimer's disease: Beyond 'cure' and 'care'

机译:早期诊断和阿尔茨海默氏病:超越“治愈”和“护理”

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Research on early diagnostics for Alzheimer's disease is supported by what has been labeled as aging-and-innovation discourse, in which innovation is assumed to (partially) resolve the societal problems related to aging. This discourse draws on a specific way of understanding Alzheimer's disease and ways to deal with this condition, namely a biomedical model of Alzheimer's disease, making the socio-cultural dimensions of Alzheimer's disease and aging less visible. In this paper we further scrutinize the various meanings of this innovation by analyzing how it is intertwined with different ways to define Alzheimer's disease and strategies to deal with it. We investigate interpretative packages in two distinctly different settings: a health technology assessment (closely related to the current research on early diagnostics) and Alzheimer's Cafes (where patients and their family meet). Eleven interpretative packages summarize the scope of ongoing deliberation in these two settings. By comparing and contrasting these interpretative packages we are able to better characterize how new health technologies are accompanied with definitions of the problem and forecasts of the future. We conclude that these interpretative packages about early diagnostics are less monolithic and host a variety of different, sometimes conflicting definitions of early diagnostics, the problem of Alzheimer's disease and its multiple futures. (C) 2014 The Authors. Published by Elsevier Inc. This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/3.0/).
机译:阿尔茨海默氏病的早期诊断研究得到了“衰老与创新”研究的支持,在该研究中,人们认为创新可以(部分)解决与衰老有关的社会问题。该论述基于了解阿尔茨海默氏病的特定方法以及应对这种状况的方法,即阿尔茨海默氏病的生物医学模型,这使得人们对阿尔茨海默氏病和衰老的社会文化层面的认识不那么明显。在本文中,我们通过分析创新与阿尔茨海默氏病定义的不同方式以及应对策略的不同方式,进一步研究了这项创新的各种含义。我们在两种截然不同的环境中研究解释性软件包:一项健康技术评估(与当前有关早期诊断的研究紧密相关)和阿尔茨海默氏症咖啡馆(患者及其家人在此聚会)。十一个解释包总结了这两种情况下正在进行的审议的范围。通过比较和对比这些解释性说明,我们能够更好地表征新卫生技术如何与问题的定义和对未来的预测相结合。我们得出的结论是,这些有关早期诊断的解释性软件包不那么单一,并且包含各种不同的,有时相互冲突的早期诊断定义,阿尔茨海默氏病问题及其未来。 (C)2014作者。由Elsevier Inc.发行。这是CC BY许可下的开放访问文章(http://creativecommons.org/licenses/by/3.0/)。

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