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首页> 外文期刊>Preventive Medicine: An International Journal Devoted to Practice and Theory >Familial hypercholesterolaemia and quality of life in family members.
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Familial hypercholesterolaemia and quality of life in family members.

机译：家族性高胆固醇血症和家庭成员的生活质量。

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BACKGROUND: Awareness of genetic disease in the family may influence quality of life. The purpose of this study was to describe quality of life among nonaffected members of families with familial hypercholesterolaemia. All were aware of the risk for coronary heart disease. Their quality of life was compared with a reference group and with the patients with familial hypercholesterolaemia themselves. METHODS: Names of family members (n = 129) were given by the patients with familial hypercholesterolaemia. A randomly selected reference group (n = 1485) and patients with familial hypercholesterolaemia (n = 185) were included for comparison. They all completed the questionnaire Quality of Life Index, the Hospital Anxiety and Depression Scale, and the Mastery Scale measuring coping. Family members and patients with familial hypercholesterolaemia also completed a questionnaire on health and lipids. RESULTS: Family members were more satisfied with family life, mean 22.1 +/- 3.5 (SD), and psychological/spiritual life, 22.9 +/- 4.0, than the reference group, 21.4 +/- 4.3 and 21.1 +/- 4.8, respectively; this was particularly expressed among partners, P < 0.05. Of family members, 91% were anxious about the patient with familial hypercholesterolaemia developing coronary heart disease. CONCLUSIONS: Family members have as good a quality of life as members of the reference group, but they were anxious about the patient with familial hypercholesterolaemia developing coronary heart disease.
机译：背景：家庭中对遗传疾病的意识可能会影响生活质量。这项研究的目的是描述家族性高胆固醇血症家庭中未受影响成员的生活质量。所有人都知道冠心病的风险。将他们的生活质量与参考组以及家族性高胆固醇血症患者进行比较。方法：家族成员的名字（n = 129）由家族性高胆固醇血症患者提供。比较一个随机选择的参考组（n = 1485）和家族性高胆固醇血症患者（n = 185）。他们都完成了生活质量指数，医院焦虑和抑郁量表以及掌握应对量表。家庭成员和家族性高胆固醇血症患者也填写了有关健康和血脂的问卷。结果：家庭成员对家庭生活的平均满意度为22.1 +/- 3.5（SD），平均心理满意度为22.9 +/- 4.0，而对参考者的满意度为21.4 +/- 4.3和21.1 +/- 4.8，分别;合作伙伴之间尤其如此，P <0.05。在家庭成员中，有91％的人担心患有发展性冠心病的家族性高胆固醇血症患者。结论：家庭成员的生活质量与参考组相同，但他们担心患有家族性高胆固醇血症发展为冠心病的患者。

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