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Ethics and research among persons with disabilities in long-term care

机译：长期护理中残疾人的伦理和研究

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In this article, I reveal the arguments used to gain ethics approval to do research among persons with disabilities in adult residential care in New Brunswick and the specific ways I planned to act in their best interests. I also discuss the unexpected dilemmas encountered in the field and my efforts to resolve them. These dilemmas included determining the capacity of the persons in care to assent to be interviewed, addressing the propensity for acquiescence, dealing with anonymity and confidentiality issues, finding the optimum contexts for interviews, preparing participants for when I would leave the field, negotiating full disclosure as the mother of an adult with disabilities in long-term care, and ensuring that no persons under the auspices of the Office of the Public Trustee in New Brunswick participated in this research. I conclude that specific efforts should continue to be made to include persons with disabilities in future research.
机译：在本文中，我将揭示在新不伦瑞克省进行成人居家护理中的残疾人之间进行研究时，要获得伦理学批准的论点，以及我计划为自己的最大利益采取行动的具体方式。我还将讨论该领域遇到的意外困境以及我为解决这些困境所付出的努力。这些难题包括确定护理人员同意接受采访的能力，解决默许的倾向，处理匿名性和机密性问题，找到最佳的采访背景，为参与者准备何时离开现场，就全面披露进行谈判作为一名长期护理残疾成人的母亲，并确保在新不伦瑞克省公共受托人办公室主持下没有任何人参加这项研究。我得出结论，应继续作出具体努力，将残疾人纳入未来的研究。

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