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I have mastered the challenge of living with a chronic disease: life stories of people with rheumatoid arthritis.

机译:我已经掌握了患有慢性疾病的挑战:类风湿关节炎患者的生活故事。

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摘要

Our aim with this study was to explore the narrative life story of individuals diagnosed with rheumatoid arthritis. An open qualitative approach, namely narrative biographic methodology, was applied to include the life context of the participants and to deliberately exclude predefinitions of concepts. Ten people with rheumatoid arthritis who retired early because of the disease participated and were interviewed three times according to a narrative biographic interview style. The biographical data and the interview texts were analyzed both individually and in comparison to each other. Some participants regarded rheumatoid arthritis as a challenge for mastery in their lives, whereas others adapted to the disease and "made the best out of a bad situation." Especially in countries where the medical model predominates in health care, our findings can be used to broaden the current view that some health professionals have toward patients, and stress the importance of patients being self-responsible.
机译:这项研究的目的是探讨被诊断为类风湿关节炎的个体的叙事故事。采用开放的定性方法,即叙事传记方法,以包括参与者的生活背景,并故意排除概念的预定义。十名因该病而提前退休的类风湿关节炎患者参加了该活动,并根据叙述性传记式采访方式接受了三次采访。传记数据和访谈文本均经过单独分析和相互比较。一些参与者认为类风湿关节炎是生活中挑战的挑战,而另一些参与者则适应了这种疾病并“从恶劣的情况中取得了最好的成绩”。特别是在医疗模式在医疗保健中占主导地位的国家,我们的发现可用于扩大一些医疗专业人员对患者的当前看法,并强调患者必须自负盈亏。

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