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Moving to place: childhood cancer treatment decision making in single-parent and repartnered family structures.

机译:搬到地方:在单亲和伴侣家庭结构中的儿童期癌症治疗决策。

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摘要

Few researchers have studied how parents from diverse family structures cope with childhood chronic illness. We designed this study to discern the childhood cancer treatment decision-making (TDM) process in these families. Using grounded theory, we interviewed 15 custodial parents, nonresidential parents, and stepparents who had previously made a major treatment decision for their children with cancer. Moving to place negotiated involvement in TDM. Parents moved toward or were moved away from involvement based on parent position in the family (custodial, nonresidential, and stepparent), prediagnosis family dynamics, and time since diagnosis. Parents used the actions of stepping up, stepping back, being pushed, and stepping away to respond to the need for TDM. Parents faced additional stressors because of their family situations, which affected the TDM process. Findings from this study provide important insight into diverse families and their unique parental TDM experiences.
机译:很少有研究者研究过来自不同家庭结构的父母如何应对儿童期慢性病。我们设计了这项研究,以识别这些家庭的儿童期癌症治疗决策(TDM)过程。使用扎根理论,我们采访了15位监护父母,非居住父母和继父母,这些父母以前曾为患癌症的孩子做出重大治疗决定。移至通过谈判参与TDM。父母会根据家庭中父母的位置(监护,非居住和继父母),诊断前的家庭动态以及诊断后的时间来移入或移出参与。家长们采取了加紧,后退,被推挤和离开的动作来响应对TDM的需求。父母由于家庭状况而面临额外的压力,这影响了TDM过程。这项研究的发现为深入了解各种家庭及其独特的父母TDM体验提供了重要的见识。

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