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Women's experiences in a community-based participatory research randomized controlled trial

机译：妇女在基于社区参与性研究的随机对照试验中的经验

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摘要

Integrating community-based participatory research (CBPR) into traditional study designs can enhance outcomes in studies with disadvantaged groups. Little is known, however, about study participants' experiences with these approaches, the underlying processes involved in creating more positive outcomes, and whether undesirable effects on study outcomes occur simultaneously. We conducted focus group interviews with 31 disadvantaged women who participated in a CBPR-driven randomized controlled trial (RCT) both to explore their study experiences and to obtain their interpretations of select study findings. Using dimensional analysis, we found the tailored health questionnaire, treatment by study staff members, and RCT participants' understandings of and responses to randomization were salient to what women described as transformative experiences that occurred over the course of the RCT. These findings have implications for understanding how CBPR and non-CBPR aspects of interventions and study designs have the potential to affect both process and endpoint study outcomes.
机译：将基于社区的参与性研究（CBPR）整合到传统研究设计中可以提高弱势群体研究的结果。然而，对于研究参与者使用这些方法的经验，创造更多积极成果所涉及的基本过程以及是否同时发生对研究成果的不良影响知之甚少。我们对参加CBPR驱动的随机对照试验（RCT）的31名弱势女性进行了焦点小组访谈，以探讨他们的学习经历并获得对某些研究结果的解释。使用维度分析，我们发现量身定制的健康调查表，研究人员的治疗方式以及RCT参与者对随机化的理解和回应对女性描述的在RCT过程中发生的变革性经历非常重要。这些发现对理解干预和研究设计的CBPR和非CBPR方面如何影响过程和终点研究结果具有潜在的意义。

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