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首页> 外文期刊>Qualitative health research >Experiences of intimacy among people with bladder exstrophy
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Experiences of intimacy among people with bladder exstrophy

机译：膀胱萎缩症患者的亲密经历

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摘要

Previous research investigating the psychosocial and psychosexual impact of living with the complex genitourinary condition bladder exstrophy has been limited in scope and methodological quality. However, the limited evidence suggests that people with bladder exstrophy commonly encounter difficulties that might negatively impact their experiences of intimacy. We conducted an interpretative phenomenological analysis to explore intimacy in 6 participants aged 16 to 56 years. Participants discussed how their parents and later they themselves concealed their health condition. This concealment was associated with feeling safe and protected, yet shameful. Participants also discussed developing intimate knowledge of their own emerging identity while developing intimacy with others, as well as the importance of sharing the experience of bladder exstrophy with others in the development of intimate relationships. We discuss the findings in relation to theoretical issues of concealment, shame, attachment, psychosocial development, intimacy, and chronic illness.
机译：先前的研究对患有复杂的泌尿生殖系统疾病膀胱外翻的人的社会心理和心理影响的研究在范围和方法学质量上受到限制。但是，有限的证据表明，患有膀胱外翻的人通常会遇到可能对他们的亲密经历产生负面影响的困难。我们进行了解释性的现象学分析，以探讨6位16至56岁参与者的亲密关系。参加者讨论了他们的父母以及后来他们自己如何掩盖健康状况。这种隐瞒与感到安全和受到保护但可耻的感觉有关。参加者们还讨论了在与他人建立亲密关系的同时，逐渐发展自己对自己新出现的身份的了解，以及在发展亲密关系中与他人分享膀胱萎缩症经验的重要性。我们讨论有关隐瞒，羞耻，依恋，社会心理发展，亲密关系和慢性病等理论问题的发现。

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