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Normalization strategies of children with asthma.

机译:哮喘儿童的正常化策略。

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摘要

Despite understanding the physiologic effects of childhood asthma, less is known about how children perceive living with asthma. We undertook semistructured, in-depth interviews with 11 boys and 11 girls (all aged 11) drawn from a larger ongoing asthma study of Manitoba children born in 1995. All had asthma, as diagnosed by a pediatric allergist. We sought to further understand how children perceive asthma. Children spoke of feeling different and commonly used words such as "pain" and "hurt." We have categorized children's strategies to normalize their lives as (a) minimizing the health impact, (b) stressing normality, (c) emphasizing abilities, (d) making adaptations in daily living, and, (e) managing symptoms with medications. These findings suggest that aspects of other researchers' work regarding normalization efforts of children with various chronic diseases also apply in a chronic condition that is less obvious.
机译:尽管了解儿童哮喘的生理影响,但对儿童如何看待哮喘的知之甚少。我们对来自1995年出生的马尼托巴省儿童的一项正在进行的较大规模的哮喘研究进行了调查,对11名男孩和11名女孩(均为11岁)进行了半结构化,深入访谈。所有患儿均由小儿过敏科确诊为哮喘。我们试图进一步了解儿童如何看待哮喘。孩子们说感觉不同和常用的词,例如“疼痛”和“伤害”。我们将儿童的正常化生活策略归类为(a)尽量减少对健康的影响;(b)强调正常性;(c)强调能力;(d)适应日常生活;以及(e)用药物治疗症状。这些发现表明,其他研究人员在各种慢性疾病儿童正常化工作方面的工作也适用于不太明显的慢性疾病。

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