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首页> 外文期刊>Psychosomatics >Emotional and behavioral changes in parents of children affected by hemolytic-uremic syndrome associated with verocytotoxin-producing Escherichia coli: a qualitative analysis.
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Emotional and behavioral changes in parents of children affected by hemolytic-uremic syndrome associated with verocytotoxin-producing Escherichia coli: a qualitative analysis.

机译：溶血性尿毒症综合征与产高铁毒素的大肠杆菌相关的患儿父母的情绪和行为变化：定性分析。

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BACKGROUND: The long-term clinical outcome for children affected by hemolytic uremic syndrome associated with verocytotoxin-producing Escherichia coli (VTEC-HUS) is well documented, but the parental experience is not. OBJECTIVE: The authors investigated the effects of the critical-care hospitalization for this condition on well-being of patients' families. METHOD: A group of 30 parents completed a free-response format survey when their child presented to the hospital; 19 of this cohort completed a 1-year follow-up. RESULTS: Content analysis demonstrated that this cohort of parents experienced long-term emotional distress and substantive disruption to family and daily life. DISCUSSION: These results corroborate anecdotal clinical observations. The authors suggest future research initiatives and best practices to reduce parental distress.
机译：背景：有证据表明，患有溶血性尿毒症综合征并伴有产高细胞毒素的大肠埃希氏菌（VTEC-HUS）的患儿的长期临床结局已得到充分证明，但父母的经历却没有。目的：作者调查了这种情况下的重症监护住院对患者家庭幸福的影响。方法：由30名父母组成的小组在孩子出院时完成了免费答复格式的调查。该队列中的19个完成了为期1年的随访。结果：内容分析表明，这一组父母经历了长期的情绪困扰，并严重破坏了家庭和日常生活。讨论：这些结果证实了轶闻的临床观察。作者提出了减少父母痛苦的未来研究计划和最佳实践。

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