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首页> 外文期刊>The American journal of geriatric psychiatry: official journal of the American Association for Geriatric Psychiatry >Correlates of quality of life for individuals with dementia living at home: The role of home environment, caregiver, and patient-related characteristics
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Correlates of quality of life for individuals with dementia living at home: The role of home environment, caregiver, and patient-related characteristics

机译：在家中患有痴呆症的人的生活质量的相关性：家庭环境，照料者和患者相关特征的作用

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摘要

Objectives: To examine prevalence of modifiable risk factors and their contribution to patient quality of life (QoL) as rated by dementia patients and family caregivers. Design: Cross-sectional. Setting: Home environment. Participants: 88 patients and their caregivers. Measurements: Modifiable characteristics of home environments, patients, and caregivers were observed or obtained through interview. Demographics and ratings of patients' QoL were obtained from patients and caregivers. Results: Patients had mean Mini-mental Status Examination (MMSE) score = 17.7 ± 4.6, (range: 10-28) on an average 7.7 ± 2.4 neuropsychiatric behaviors, 6.0 ±3.1 health conditions and moderate functional challenges; 70.7% (N = 58) had fall risk; 60.5% (N = 52) had sleep problems at least once weekly; and 42.5% (N = 37) had pain. An average of 8.1 ± 5.2 home hazards and 5.4 ±4.1 adaptations were observed; 51.7% had unmet deviceavigation needs. Patients' and caregivers' QoL ratings were unrelated to MMSE; and patients' self-rated QoL was higher than rated by caregivers. Number of health conditions and unmet deviceavigation needs were inversely associated with patient self-rated QoL, and number of health conditions, frequency of behaviors, and level of negative communications were inversely associated with caregiver's assessment of patient QoL. Positive endorsement of caregiving was positively associated with caregiver's appraisal of patient QoL. Other factors were unrelated. Conclusions: Most patients lived at home with high fall risk, unmanaged behavioral symptoms, pain, sleep disturbances, environmental challenges, and multiple hazards. Except for health, factors associated with lower QoL differed for patients and caregivers. Results suggest need to improve QoL by addressing modifiable risk factors and tailoring interventions to patient and caregiver perspectives.
机译：目的：检查痴呆症患者和家庭护理人员对可改变的危险因素的患病率及其对患者生活质量（QoL）的影响。设计：横截面。布置：家庭环境。参加者：88名患者及其护理者。测量：通过访谈观察或获得家庭环境，患者和护理人员的可修改特征。患者的QoL的人口统计学和等级是从患者和看护者那里获得的。结果：患者的平均迷你精神状态检查（MMSE）得分= 17.7±4.6（范围：10-28），平均神经精神行为7.7±2.4，健康状况6.0±3.1，中度功能挑战; 70.7％（N = 58）有跌倒的危险; 60.5％（N = 52）每周至少有一次睡眠问题; 42.5％（N = 37）有疼痛。平均观察到8.1±5.2家庭危害和5.4±4.1适应; 51.7％的设备/导航需求未满足。患者和护理人员的QoL评分与MMSE无关;并且患者的自我评价QoL高于护理人员的评价。健康状况的数量和未满足的设备/导航需求与患者自我评价的QoL成反比，健康状况的数量，行为的频率和负面沟通的程度与护理者对患者QoL的评估成反比。照顾者的积极认可与照顾者对患者生活质量的评估成正相关。其他因素无关。结论：大多数患者在家中具有高跌倒风险，行为失控，疼痛，睡眠障碍，环境挑战和多重危害。除了健康以外，与患者和护理人员有关的降低生活质量的因素也有所不同。结果表明需要通过解决可修改的风险因素并根据患者和护理人员的观点调整干预措施来改善QoL。

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