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The Righy Not to Know and the Dutv to Tell:The Case of Relatives

机译:不知情权和告知义务:亲戚案

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摘要

This text is about obtaining and sharing genetic information when there is a potential conflict of interests between patients and their families and relatives. The patient or, in this text, the "index-person," is someone who is considering obtaining or already has obtained genetic information about herself through genetic testing.The index-person can have several reasons to take an interest in obtaining her genetic information. She may want to know if she has a genetic predisposition for a disorder in order to take measures for preventing its development.
机译:本文是关于在患者及其家人和亲戚之间存在潜在利益冲突时获取和共享遗传信息的。患者或本文中的“索引人”是正在考虑通过基因测试获得或已经获得有关她自己的遗传信息的人。索引人可能有多种理由对获取她的遗传信息感兴趣。她可能想知道她是否患有某种疾病的遗传易感性,以便采取措施预防其发展。

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