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首页> 外文期刊>Western journal of nursing research >Spirituality and Religiosity in Adolescents Living With Sickle Cell Disease
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Spirituality and Religiosity in Adolescents Living With Sickle Cell Disease

机译：镰状细胞病青少年的精神和宗教信仰

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This study purports to address paucity in the literature regarding how adolescents with sickle cell disease (SCD) describe and experience spirituality and religiosity (S/R). This was a qualitative descriptive study. Two semi-structured interviews were conducted with nine adolescents (M-age = 16.2 years). Data were analyzed using a template analysis style and a concurrent analysis process of data reduction. Three major themes encompassed the participants' descriptions of the relationships between S/R, health and illness in their lives including S/R as sources for coping, influence of S/R beliefs on health and illness, and sharing S/R with Health Care Providers (HCPs). S/R as coping mechanisms included six threads: interconnecting with God, interconnecting with others, interconnecting with creative arts, scriptural metanarratives, transcendent experiences, and acceptance and finding meaning. Expectations of health providers included two threads: Religiosity is private/personal and sharing spiritual and religious beliefs is risky. S/R are particularly salient for adolescents with SCD.
机译：这项研究旨在解决文献中关于镰状细胞疾病（SCD）青少年如何描述和体验灵性和宗教信仰（S / R）的问题。这是定性的描述性研究。对九个青少年（M-年龄= 16.2岁）进行了两次半结构式访谈。使用模板分析样式和数据缩减的并行分析过程来分析数据。三个主要主题包括参与者对生活中S / R，健康和疾病之间关系的描述，包括S / R作为应对方式，S / R信念对健康和疾病的影响以及与卫生保健共享S / R提供者（HCP）。 S / R作为应对机制包括六个线程：与上帝互联，与他人互联，与创意艺术，圣经元叙事，超越体验以及接受和寻找意义。对医疗服务提供者的期望包括两个方面：宗教是私人/个人，分享精神和宗教信仰是有风险的。 S / R对于患有SCD的青少年特别重要。

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