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首页> 外文期刊>Health >When resources get sparse: a longitudinal, qualitative study of emotions, coping and resource-creation when parenting a young child with severe disabilities.
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When resources get sparse: a longitudinal, qualitative study of emotions, coping and resource-creation when parenting a young child with severe disabilities.

机译：当资源稀疏时：对重度残疾的幼儿进行育儿时对情感，应对和创造资源的纵向，定性研究。

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Parents who realize that their newborn child is severely disabled often experience severe physical and emotional stress. Parental well-being is essential for the care-taking of the child. It is yet not known why some cope well and others do not. The aim of this study was to explore how parents coped with parenting a disabled child and how they maintained their energy and personal resources. We explored parents' experiences, coping and resources over a two-year period after their child was diagnosed with a severely disabling condition using a qualitative, longitudinal approach. Findings were interpreted in a theoretical framework of Lazarus and Folkman's studies on coping and Fredrickson's broaden-and-build theory of positive emotions, as well as theories of positive illusions and benefit finding during severe adversity. We found that parents continually created and sustained their personal resources through positive cognitive reappraisals of their circumstances, the consequences of those circumstances and their coping possibilities. Nine main coping strategies were identified constituting transformative pathways in resource-creation. A theory of resource-creation is proposed as an addition to the current understanding of coping and the role of positive emotions. Coping and resources were found to be closely interrelated and portals of intervention are discussed.
机译：意识到自己的新生儿严重残疾的父母经常会遭受严重的身心压力。父母的幸福对于照顾孩子至关重要。尚不知道为什么有些人能应付得起而另一些人却不能应付。这项研究的目的是探讨父母如何应付为残疾儿童做父母，以及他们如何保持精力和个人资源。在定性，纵向的方法下，他们的孩子被诊断出患有严重残疾后，我们在两年内探索了父母的经历，应对和资源。在拉撒路和福克曼的应对研究理论和弗雷德里克森关于积极情绪的拓宽与构建理论，以及在严重逆境中的积极幻想和收益发现的理论框架中解释了这些发现。我们发现，父母通过对自己的情况，这些情况的后果以及应对可能性的积极认知重新评估，不断创造并维持自己的个人资源。确定了九种主要应对策略，这些策略构成了资源创造中的转化途径。提出了一种资源创造理论，作为对当前应对和积极情绪作用的理解的补充。发现应对和资源密切相关，并讨论了干预的门户。

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