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首页> 外文期刊>Health policy and planning >'What if they ask how I got it?' Dilemmas of disclosing parental HIV status and testing children for HIV in Uganda.
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'What if they ask how I got it?' Dilemmas of disclosing parental HIV status and testing children for HIV in Uganda.

机译：“如果他们问我怎么得到的呢？”在乌干达披露父母艾滋病毒状况和对儿童进行艾滋病毒检测的难题。

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BACKGROUND Limited research has been conducted outside Western settings on how HIV-positive parents decide to test and disclose their own HIV status to children. We conducted a qualitative study in 2001 and 2005 to assess parent attitudes and current counselling policy and practice regarding child testing and parental disclosure in Uganda prior to the roll-out of antiretroviral therapy. METHODS Parent perspectives were obtained through extended in-depth interviews with 10 HIV-positive parents recruited from The AIDS Support Organization (TASO), Entebbe branch. Counselling policy and practice were explored through key informant interviews with directors and two counsellors from each of five Ugandan counselling institutions with national or regional coverage. RESULTS Respondents had 51 children ranging from 4 to 36 years with a median age of 13. Five of 10 parents had disclosed their status to their children, usually to all, and four of these had tested one child for HIV. All those who tested any child had also disclosed their status to some or all of their children. Parents regularly worried that their children may be infected, but all preferred to wait for emergence of symptoms before considering HIV tests, citing fear of children's emotional reaction and lack of perceived benefits from knowing status. Counselling policy directors confirmed the absence of policy and training guidelines on the subject of parent-child disclosure. Counsellors reported improvising and giving inconsistent advice on this common concern of clients. CONCLUSIONS Concerns over disclosure to children of parent's HIV status and testing children for HIV represent a major psychological burden for HIV-positive parents. Further research is needed, but current counselling practice could be improved now by adapting lessons learned from existing research.
机译：背景技术在西方国家之外已经进行了关于艾滋病毒阳性父母如何决定测试并向儿童披露自己的艾滋病毒状况的有限研究。我们在2001年和2005年进行了定性研究，以评估在推出抗逆转录病毒治疗之前，乌干达的父母对儿童测试和父母披露的态度以及当前的咨询政策和做法。方法通过与恩德培分部艾滋病支持组织（TASO）招募的10名HIV阳性父母进行深入访谈，获得了父母的观点。通过与五个乌干达咨询机构的负责人和两名顾问进行的关键知情人访谈，探讨了咨询政策和做法，这些机构均覆盖了国家或地区。结果受访者有51名儿童，年龄在4至36岁之间，中位年龄为13岁。10名父母中有5名向孩子（通常向所有人）透露了自己的状况，其中四名对一个孩子进行了HIV检测。对所有孩子进行检查的所有人员还向部分或全部孩子透露了自己的身份。父母通常担心自己的孩子可能受到感染，但是所有人都希望在考虑进行艾滋病毒检测之前先等待症状的出现，因为他们担心孩子的情绪反应以及由于了解身份而缺乏可感知的益处。咨询政策主管确认，没有针对亲子披露主题的政策和培训指南。辅导员报告说，对于客户的这一共同关心的问题，他们即兴发挥并给出不一致的建议。结论对于向父母披露其父母的HIV状况以及对孩子进行HIV检测的担忧，对HIV阳性父母构成了主要的心理负担。需要做进一步的研究，但是现在的咨询实践可以通过调整从现有研究中学到的经验教训加以改进。

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