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Families' and healthcare professionals' perceptions of healthcare services for children and young people with medically unexplained symptoms: anarrative review of the literature

机译：家庭和医疗保健专业人员对具有无法解释的医学症状的儿童和年轻人的医疗服务看法：文献的叙事性回顾

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Children and young people frequently report physical complaints that have no observable physical pathology known as medically unexplained symptoms (MUS). Research suggests that MUS are associated with substantial physical and psychological impairments and may have a negative impact on children's and young people's functional status and well-being in the long term. Due to the potentially complex needs of this group, children and young people with MUS may require timely access to suitable health and social care services to effectively manage symptoms and achieve their academic, social and personal potential. Families and professionals can offer important insights into the availability and appropriateness of current community and specialist health and social care services. This review is the first critical evaluation and synthesis of research that has examined families' and healthcare professionals' (HCP) perceptions of healthcare services for children and young people with MUS. A systematic search of electronic databases and manual searches of key journals and reference lists identified 17 papers from 15 studies for inclusion in the review. The review highlights the paucity of rigorously conducted research on this topic. Studies have been narrowly focused on the views of a homogeneous group of mothers and young people attending single centres. There has been some attempt to examine doctors' views, but the perceptions of children, fathers and health and social care professionals are absent or under-represented, and multi-site and longitudinal studies are lacking. Thematic analysis of the results from the included studies suggests that knowledge, communication, health beliefs and healthcare settings are factors that influence families' and HCPs' perceptions of services. Families report dissatisfaction with some HCPs' approach to managing MUS. The findings suggest that children and young people with MUS are at risk of receiving suboptimal care and support because there is insufficient research to inform high-quality, evidence-based practice.
机译：儿童和年轻人经常报告身体不适，没有可观察到的物理病理，称为医学上无法解释的症状（MUS）。研究表明，长期以来，MUS与严重的身心障碍有关，可能对儿童和年轻人的功能状况和幸福产生负面影响。由于这一群体的潜在复杂需求，患有MUS的儿童和年轻人可能需要及时获得适当的健康和社会护理服务，以有效地管理症状并实现其学术，社会和个人潜力。家庭和专业人员可以提供有关当前社区以及专职健康和社会护理服务的可用性和适当性的重要见解。这篇综述是对研究家庭，医疗保健专业人员（HCP）对患有MUS的儿童和年轻人的医疗服务看法的首次重要评估和综合研究。通过对电子数据库的系统搜索以及对关键期刊和参考文献列表的手动搜索，从15项研究中鉴定出17篇论文，将其纳入评论。该评论强调了对此主题进行的严格研究的不足。研究只集中在一个单一中心的母亲和年轻人组成的同质群体的观点上。已经进行了一些尝试来检查医生的观点，但是对儿童，父亲以及健康和社会护理专业人员的看法却不存在或代表性不足，并且缺乏多地点和纵向的研究。对所包括研究结果的主题分析表明，知识，沟通，健康信念和医疗环境是影响家庭和HCP对服务的看法的因素。家庭报告对某些HCP管理MUS的方法不满意。研究结果表明，患有MUS的儿童和年轻人面临接受最佳护理和支持的风险，因为尚无足够的研究来提供高质量的循证医学实践信息。

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