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首页> 外文期刊>Disability and health journal >A population-based assessment of the health, functional status, and consequent family impact among children with Down syndrome.
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A population-based assessment of the health, functional status, and consequent family impact among children with Down syndrome.

机译：对唐氏综合症患儿的健康，功能状况及其对家庭的影响进行基于人群的评估。

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BACKGROUND: Many health conditions have been described in children with Down syndrome (DS). However, there are little comparative population-based data available. OBJECTIVE/HYPOTHESES: We sought to examine the health impacts associated with DS and other disabling conditions in U.S. children included in the 2005-2006 National Survey of Children with Special Health Care Needs. METHODS: We assessed numerous health and functional outcomes in children with DS and without DS but with (1) mental retardation/developmental delay(1) and another developmental disability associated with a high functional impact; (2) mental retardation/developmental delay but no co-occurring high-impact disability; (3) other special health care needs; and (4) no special health care needs (referent). RESULTS: Children with DS and in all 3 special health care needs comparison groups had substantially more health and functional difficulties than did the referent sample. Overall, children with DS were fairly comparable to children in the other mental retardation/developmental delay groups on health indicators; however, young children with DS were more likely than young children in both other mental retardation and swallowing/digestion/metabolism. Children with both DS and mental retardation associated with another high-impact disability had the highest levels of functional difficulties, unmet health needs, and family financial impacts. Nearly 60% of families in both groups provided home health care; in over 40%, a family member stopped working because of the child's condition; and about 40% reported the child's condition caused financial problems. CONCLUSIONS: Children with DS can have substantial health and functional difficulties, with numerous financial impacts on their families.
机译：背景：唐氏综合症（DS）患儿已描述了许多健康状况。但是，几乎没有基于人口的比较数据。目标/假设：我们试图研究与DS和其他残障相关的健康影响，并纳入2005-2006年全国特殊健康儿童需求调查中。方法：我们评估了患有DS和没有DS但患有（1）智力低下/发育迟缓（1）以及另一项与高功能影响有关的发育障碍的儿童的许多健康和功能结局; （2）智力低下/发育迟缓，但没有同时发生的高影响力残疾; （三）其他特殊保健需要; （4）不需要特殊的医疗保健（参考）。结果：DS儿童和所有3个特殊医疗需求比较组的儿童在健康和功能上的困难比参考样本多得多。总体而言，DS患儿的健康指标与其他智障/发育迟缓组的患儿相当。然而，DS的幼儿在其他智力低下和吞咽/消化/代谢方面的可能性均高于幼儿。患有DS和智力低下并伴有另一种严重影响力残疾的儿童，其功能障碍，未满足的健康需求和家庭财务影响的水平最高。两组中将近60％的家庭提供了家庭保健;超过40％的家庭成员由于孩子的病情而停止工作;大约40％的孩子报告说孩子的病情造成了财务问题。结论：DS患儿可能有严重的健康和功能障碍，对其家庭有很多财务影响。

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