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首页> 外文期刊>Disability and rehabilitation. >Health-related quality of life among informal caregivers assisting people with multiple sclerosis.
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Health-related quality of life among informal caregivers assisting people with multiple sclerosis.

机译：非正式照料者中与健康相关的生活质量，可帮助多发性硬化症患者。

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OBJECTIVE: To identify factors affecting the health-related quality of life (HRQOL) of informal caregivers assisting people with (multiple sclerosis) MS who have greater functional impairment. METHODS: Data were collected in a national survey of 530 people who provided informal care to people with MS. Multiple linear regression models analyzed these data. RESULTS: Poorer overall health for the person with MS, stronger agreement by caregivers that care giving was burdensome or emotionally draining, and the caregiver's need for mental health counseling in the past 12 months were associated with lower mental dimensions of HRQOL for the informal caregiver. Greater caregiver satisfaction with the access the person with MS had to MS-focused care was associated with higher mental dimensions of HRQOL among caregivers. CONCLUSIONS: Increasing access to MS-focused care could improve not only the health of people with MS, but also improve the mental dimensions of caregiver HRQOL. Our findings highlight the importance of addressing the mental health needs of informal caregivers assisting people with MS.
机译：目的：确定影响非正式护理人员的健康相关生活质量（HRQOL）的因素，这些非正式护理人员可帮助患有（多发性硬化）功能障碍较大的MS患者。方法：数据收集于对530名向MS患者提供非正式护理的人的全国调查中。多个线性回归模型分析了这些数据。结果：MS患者的整体健康状况较差，护理人员达成的更广泛的共识，即照护工作繁重或情绪消耗，并且在过去的12个月中，护理人员对心理健康咨询的需求与非正式护理人员的HRQOL的心理维度较低有关。照护者对MS患者获得以MS为重点的护理的机会的满意度更高，这与照护者中HRQOL的较高心理维度有关。结论：增加获得以MS为中心的护理的机会，不仅可以改善MS患者的健康，而且可以改善护理者HRQOL的心理维度。我们的研究结果突出了解决非正式护理人员协助MS患者的心理健康需求的重要性。

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