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Producing boundary-breaking texts on disability issues: The personal politics of collaboration

机译:制作有关残疾问题的突破性文本:合作的个人政治

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Purpose: This article explores the reflection on a process of inter-collaborative team work to produce a photographic book on caregivers' experiences of parenting their disabled children. The team of authors consisted of members with diverse backgrounds, including media studies, social science and photography. The purpose of this article was to explore and gain a deeper understanding of the process of boundary breaking, one which is important if we are to develop new knowledges and new ways of thinking about disability. Method: In-depth interviews were conducted with all contributors to the book. Results: Themes emerging from the interviews include the existence of different worlds, crossing boundaries, questions about expertise, conflicting hopes and expectations, and the ethics of anonymity. Conclusion: An account of the anxieties, the frustrations and rewarding aspects of the collaboration is provided. We conclude that "us" and "them" categorization permeates our thinking. It characterizes some of the most simplistic thinking in the world of disability able-bodied vs. disabled. In reality, there are no such categories, we all reside along a highly differentiated continuum of changing states of impairment and health. If we open ourselves up to this reality, we can meet one another and draw on one another's knowledge and experience. Implications for Rehabilitation Collaboration between able-bodied researchers and disabled people and their families holds the potential for producing new perspectives on disability and rehabilitation. These collaborations may be emotionally challenging and they hold possibilities for a range of conflicts. Dealing with these challenges conflicts openly and honestly may lead to a deeper understanding of the issues at stake in disability and rehabilitation. We need more examples of reflection on innovative collaborative processes.
机译:目的:本文探讨了协作团队之间合作过程的思考,以制作一本关于照护者为残疾儿童做父母的经历的摄影书。作者团队由背景各异的成员组成,包括媒体研究,社会科学和摄影。本文的目的是探索和获得对边界突破过程的更深入的理解,这对于我们要开发新的知识和新的思考残疾方法非常重要。方法:对本书的所有撰稿人进行了深度访谈。结果:采访中出现的主题包括不同世界的存在,跨越边界,有关专业知识的问题,希望与期望的冲突以及匿名的伦理。结论:提供了对合作的焦虑,挫败感和回报方面的描述。我们得出结论,“我们”和“他们”的分类渗透到我们的思想中。它代表了残疾人健全与残疾人世界中一些最简单的思维。实际上,没有这样的类别,我们都生活在高度不同的,连续不断变化的损害和健康状态的统一体中。如果我们对这一现实敞开心open,我们就可以彼此见面并相互借鉴和借鉴。康复的意义健全的研究人员与残疾人及其家人之间的合作具有产生关于残疾和康复的新观点的潜力。这些合作可能在情感上具有挑战性,并且它们可能引发一系列冲突。坦诚地应对这些挑战,可能会导致对残疾和康复问题的更深刻理解。我们需要更多有关创新协作流程的反思示例。

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