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首页> 外文期刊>JAMA facial plastic surgery >Optimizing total facial nerve patient management for effective clinical outcomes research
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Optimizing total facial nerve patient management for effective clinical outcomes research

机译：优化整体面神经患者管理以进行有效的临床结果研究

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摘要

IMPORTANCE: Assessment of outcomes in patients with facial paralysis is challenging owing to the lack of objective tools to evaluate facial function and suboptimal data collection. OBJECTIVE: To describe a methodology for prospective evaluation of patients with facial paralysis that permits optimal assessment of clinical outcomes. DESIGN, SETTING, AND PARTICIPANTS: At the Massachusetts Eye and Ear Infirmary, we have treated over 2000 patients with facial nerve injury since 2002. To better quantify and improve our outcomes, we have developed what we now believe represents a systematic method for the previsit evaluation, intake, management, and follow-up of our facial nerve patients to optimize data collection for the purposes of clinical outcome studies, as detailed in this retrospective descriptive study. RESULTS: Data collection is often poor if there is not a specific individual delegated to the task and is particularly challenging in the intraoperative setting. Retrospective acquisition of data are inherently less accurate and time consuming. A user-friendly searchable database is required to use the collected data. CONCLUSIONS AND RELEVANCE: Clinical outcomes research in the field of facial paralysis requires meticulous attention to comprehensive data collection at appropriate time points, precision photography, and the use of available quality of life and objective measurement tools. Ideally, a standardized approach for data collection would be adopted that would permit multi-institutional data analysis to improve the quality of outcomes research currently available. LEVELOFEVIDENCE: NA.
机译：重要提示：由于缺乏客观的工具来评估面部功能和次优数据收集，评估面部瘫痪患者的结局具有挑战性。目的：描述对面瘫患者进行前瞻性评估的方法，该方法可对临床结果进行最佳评估。设计，地点和参与者：自2002年以来，在马萨诸塞州眼耳医院，我们已经治疗了2000多名面神经损伤患者。为了更好地量化和改善我们的结果，我们开发了我们现在认为代表预见的系统方法评估，摄入，管理和随访我们的面神经患者，以优化数据收集以用于临床结局研究，如本回顾性描述性研究所述。结果：如果没有特定的人下达任务，则数据收集通常很差，并且在术中尤其具有挑战性。回顾性数据获取本质上不那么准确且耗时。需要使用用户友好的可搜索数据库才能使用收集的数据。结论和相关性：面部麻痹领域的临床结果研究需要对适当时间点的综合数据收集，精确的照相以及使用可用的生活质量和客观测量工具进行认真的关注。理想情况下，将采用标准化的数据收集方法，该方法将允许进行多机构数据分析，以提高当前可获得的结果研究的质量。水平证据：不适用。

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