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Men family caregivers' experience of nonsupportive interactions: context and expectations.

机译:男性家庭照顾者的非支持性互动经历:背景和期望。

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摘要

Men's involvement as family caregivers has grown as the prevalence of dementia has increased. Men rely on support from others for caregiving but also experience nonsupportive interactions. The purpose of this ethnographic study of 34 men (24 spouses and 10 sons) caring for a relative with dementia, 5 assisting caregivers, and 15 professionals was to identify primary caregivers' perceptions of nonsupportive and supportive interactions in relationships with kin and friends as well as professionals. Thematic analysis of transcribed data generated from interviews, diaries, and focus group discussions revealed the nature of men's caregiving journeys, the characteristics of their social networks, and their expectations of supportive interactions. The nonsupportive interactions men caregivers experienced included a lack of orientation to the caregiving situation, an unsatisfactory linkage to support sources, insufficient support, and hurtful interactions. Information about nonsupportive interactions can sensitize kin and friends as well as professionals to the complexity of men's experience and potentially avoid unintended negative consequences of support efforts.
机译:随着痴呆症患病率的增加,男性作为家庭照料者的参与度也在增加。男性依靠他人的支持进行护理,但也会经历无支持的互动。这项民族志研究的目的是对34名男性(24名配偶和10个儿子)进行照料,以照顾患有痴呆症的亲戚,5名辅助看护者和15名专业人员,目的是确定主要看护者对亲戚和朋友关系中不支持和支持性互动的看法作为专业人士。通过访谈,日记和焦点小组讨论生成的转录数据的主题分析揭示了男性护理旅程的性质,社交网络的特征以及对支持性互动的期望。男性护理人员所经历的非支持性互动包括:缺乏对护理状况的了解,对支持来源的联系不满意,支持不足,以及有害的互动。有关非支持性互动的信息可以使亲戚,朋友以及专业人员对男性经历的复杂性敏感,并有可能避免支持工作的意外负面影响。

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