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Health Care Professionals' Perspectives of the Experiences of Family Caregivers During In-Patient Cancer Care

机译:卫生保健专业人员对患者在癌症治疗期间家庭护理人员的经历的看法

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Being a family member of a patient who is being treated in an acute care setting for cancer often involves a number of challenges. Our study describes Norwegian cancer care health professionals' perceptions of family members who served as family caregivers (FCs) and their need for support during the in-hospital cancer treatment of their ill family member. Focus group discussions were conducted with a multidisciplinary team of 24 experienced social workers, physicians, and nurses who were closely involved in the patients' in-hospital cancer treatment and care. Drawing on qualitative hermeneutic analysis, four main themes describe health professionals' perceptions of FCs during the patient's in-hospital cancer care: an asset and additional burden, infinitely strong and struggling with helplessness, being an outsider in the center of care, and being in different temporalities. We conclude that it is a challenge for health care professionals to support the family and create room for FC's needs in acute cancer care. System changes are needed in health care, so that the patient/FC dyad is viewed as a unit of care in a dual process of caregiving, which would enable FCs to be given space and inclusion in care, with their own needs simultaneously considered alongside those of the patient.
机译:在癌症的急性护理机构中接受治疗的患者的家庭成员通常面临许多挑战。我们的研究描述了挪威癌症护理健康专业人员对作为家庭看护人(FC)的家庭成员的看法,以及他们在对患病家庭成员进行院内癌症治疗期间需要支持的需求。焦点小组讨论由24名经验丰富的社会工作者,医生和护士组成的多学科团队进行,他们与患者的院内癌症治疗和护理密切相关。借助定性解释学分析,四个主要主题描述了卫生专业人员在患者住院癌症护理期间对FC的看法:资产和额外负担,无穷无尽,在无助中挣扎,成为护理中心的局外人以及处于不同的时间性。我们得出的结论是,医疗保健专业人员要为家庭提供支持并为FC在急性癌症护理中的需求创造空间是一项挑战。卫生保健中需要进行系统更改,以便在护理的双重过程中将患者/ FC dyad视为护理的一个单元,这将使FC拥有足够的空间和包容性,并同时考虑其自身需求病人

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