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Mothers' perceptions of family health history and an online, parent-generated family health history tool

机译：母亲对家庭健康史的理解以及由父母生成的在线家庭健康史工具

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Family health history (FHH) can identify families at increased risk for disease. Purpose. To learn mothers' (1) perceptions of the benefits of FHH and (2) willingness to complete a FHH tool, My Family Health Portrait (MFHP). Methods. Qualitative in-depth interviews were conducted with mothers recruited through Cincinnati Children's Hospital. Deductive and inductive codes were developed. Results. A total of 25 mothers were interviewed. Perceived benefits included keeping the pediatrician informed (n = 12; 48%) and preventive screenings recommended based on FHH (n = 10; 40%). Participants had positive impressions of MFHP and felt that it was user-friendly (n = 17; 68%). Lack of FHH knowledge was the most common challenge to completing MFHP, but most respondents stated that they would be able to complete MFHP prior to their child's medical appointment (n = 23; 92%). Conclusion. Mothers are interested in and may be motivated to complete a parent-generated FHH prior to a pediatric appointment. Future research should focus on FHH implementation in practice.
机译：家庭健康史（FHH）可以确定患病风险增加的家庭。目的。学习母亲的看法（1）对FHH好处的看法，以及（2）愿意完成FHH工具，即我的家庭健康肖像（MFHP）。方法。对通过辛辛那提儿童医院招募的母亲进行了定性深入访谈。开发了演绎和归纳代码。结果。总共采访了25位母亲。感知的好处包括让儿科医生保持知情（n = 12; 48％）和根据FHH建议进行的预防性筛查（n = 10; 40％）。与会者对MFHP抱有积极的印象，并认为它很友好（n = 17; 68％）。缺乏FHH知识是完成MFHP的最常见挑战，但是大多数受访者表示，他们将能够在孩子接受医疗之前完成MFHP（n = 23; 92％）。结论。母亲对儿童感兴趣，并可能有动机在儿科预约前完成父母代孕的FHH。未来的研究应侧重于实践中的FHH实施。

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