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首页> 外文期刊>Journal of genetic counseling >Development of E-Info Gene(ca): A Website Providing Computer-Tailored Information and Question Prompt Prior to Breast Cancer Genetic Counseling
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Development of E-Info Gene(ca): A Website Providing Computer-Tailored Information and Question Prompt Prior to Breast Cancer Genetic Counseling

机译：E-Info Gene（ca）的开发：一个在乳腺癌遗传咨询之前提供计算机辅助信息和提示问题的网站

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摘要

This article describes the stepwise development of the website 'E-info gene(ca)'. The website provides counselees in breast cancer genetic counseling with computer-tailored information and a question prompt prior to their first consultation. Counselees generally do not know what to expect from genetic counseling and they tend to have a passive role, receiving large amounts of relatively standard information. Using the "intervention mapping approach," we developed E-info gene(ca) aiming to enhance counselees' realistic expectations and participation during genetic counseling. The information on this website is tailored to counselees' individual situation (e.g., the counselee's age and cancer history). The website covers the topics of the genetic counseling process, breast cancer risk, meaning of being a carrier of a cancer gene mutation, emotional consequences and hereditary breast cancer. Finally, a question prompt encourages counselees to prepare questions for their genetic counseling visit.
机译：本文介绍了网站“ E-info gene（ca）”的逐步开发。该网站在首次进行咨询之前，会为乳腺癌遗传咨询的被咨询者提供计算机量身定制的信息和提示问题。顾问通常不知道从遗传咨询中得到什么，他们往往会被动地接受大量相对标准的信息。使用“干预图谱方法”，我们开发了E-info gene（ca），旨在增强被咨询者在遗传咨询过程中的现实期望和参与度。该网站上的信息是根据咨询对象的个人情况（例如，咨询对象的年龄和癌症病史）量身定制的。该网站涵盖了遗传咨询过程，乳腺癌风险，成为癌症基因突变的载体，情感后果和遗传性乳腺癌的主题。最后，提问提示会鼓励被咨询者为他们的遗传咨询访问准备问题。

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