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首页> 外文期刊>Journal of hospice and palliative nursing: JHPN : the official journal of the Hospice and Palliative Nurses Association >The impact of family communication patterns on hospice family caregivers: A new typology
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The impact of family communication patterns on hospice family caregivers: A new typology

机译：家庭沟通模式对临终关怀家庭看护人的影响：一种新的类型

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摘要

As patients transition to hospice/palliative care, family members face the challenge of engaging in conversations about prognosis and death. Although conversations about death and dying are optimal during hospice care, few families are able to speak openly and candidly about disease and illness and little is known about the impact of family communication patterns on the primary caregiver's stress and ability to cope. Family Communication Patterns Theory was used as a framework to investigate caregiver concerns related to family roles and responsibilities during hospice care. Audio-recorded discussions were reviewed for caregiver concerns involving 1 or more family members, and thematic coding was used to analyze the data. This study empirically identified 4 types of hospice family caregivers (manager, carrier, partner, and loner) through family communication patterns. With the exception of partner caregiver types, family caregivers deferred to the hierarchical role within the family (conformity) over communication (conversation) during hospice. Conformity in family communication did not equate with family agreement or open communication. Families emphasized communication patterns in line with family hierarchical roles rather than engaging in conversation and disclosure. Caregiver typologies can guide clinicians in using more sculpted and appropriate communication skills and practices to enable care and inclusion of family caregivers.
机译：随着患者过渡到临终关怀/姑息治疗，家庭成员面临着就预后和死亡进行对话的挑战。尽管在临终关怀护理中关于死亡和死亡的对话是最佳的，但很少有家庭能够公开坦率地谈论疾病，而对于家庭沟通方式对主要照护者的压力和应对能力的影响知之甚少。家庭沟通模式理论被用作调查临终关怀期间与家庭角色和责任有关的照顾者关注的框架。对于涉及1个或多个家庭成员的照顾者的关注，对录音讨论进行了审查，并使用了主题编码来分析数据。这项研究通过家庭沟通模式从经验上确定了4种类型的临终关怀家庭照顾者（经理，携带者，伴侣和独居者）。除了伴侣的照料者类型外，家庭照料者在临终关怀中通过沟通（对话）而被赋予家庭中的等级角色（整合）。家庭交流的合规性不等于家庭协议或公开交流。家庭强调与家庭等级角色相符的沟通模式，而不是参与对话和公开。照顾者的类型可以指导临床医生使用更雕刻和适当的沟通技巧和做法，以实现对家庭照顾者的照顾和包容。

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