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首页> 外文期刊>Journal of pediatric nursing >Caring for Children With Life-Threatening Illnesses: Impact on White, African American, and Latino Families
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Caring for Children With Life-Threatening Illnesses: Impact on White, African American, and Latino Families

机译:照顾有威胁生命的疾病的儿童:对白人,非裔美国人和拉丁裔家庭的影响

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摘要

We describe the racial and ethnic variation in family impact resulting from caring for a child with a life-threatening illness. Parents of children aged 2-21 years diagnosed with a potentially life-threatening illness and enrolled in Florida's Medicaid and Children's Medical Services Network programs were surveyed. Two hundred sixty-six telephone surveys were conducted in English and Spanish between November 2007 and April 2008. In adjusted models, compared with Whites, Latinos reported that their child's illness resulted in a greater negative impact on the family. Continued study of this group of parents is critical to developing culturally appropriate interventions to reduce strain and burden and improve the quality of life for families.
机译:我们描述了由于照顾有生命危险的孩子而导致的家庭影响中的种族和种族差异。调查了2-21岁儿童的父母,这些儿童被诊断患有可能危及生命的疾病,并参加了佛罗里达州的医疗补助和儿童医疗服务网络计划。在2007年11月至2008年4月之间,使用英语和西班牙语进行了166次电话调查。在调整后的模型中,与白人相比,拉丁裔报告说,他们孩子的疾病对家庭造成了更大的负面影响。继续对这一组父母进行研究,对于制定适合文化的干预措施以减轻压力和负担并提高家庭生活质量至关重要。

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