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首页> 外文期刊>Journal of the American Academy of Child and Adolescent Psychiatry >Caregiver burden as people with autism spectrum disorder and attention-deficit/hyperactivity disorder transition into adolescence and adulthood in the United Kingdom
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Caregiver burden as people with autism spectrum disorder and attention-deficit/hyperactivity disorder transition into adolescence and adulthood in the United Kingdom

机译：在英国，自闭症谱系障碍和注意力不足/多动障碍患者过渡到青春期和成年期，因此照顾者负担重

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There is increasing recognition that autism spectrum disorder (ASD) and attention-deficit/hyperactivity disorder (ADHD) are associated with significant costs and burdens. However, research on their impact has focused mostly on the caregivers of young children; few studies have examined caregiver burden as children transition into adolescence and young adulthood, and no one has compared the impact of ASD to other neurodevelopmental disorders (e.g., ADHD). We conducted an observational study of 192 families caring for a young person (aged 14 to 24 years) with a childhood diagnosis of ASD or ADHD (n = 101 and n = 91, respectively) in the United Kingdom. A modified stress-appraisal model was used to investigate the correlates of caregiver burden as a function of family background (parental education), primary stressors (symptoms), primary appraisal (need), and resources (use of services). Both disorders were associated with a high level of caregiver burden, but it was significantly greater in ASD. In both groups, caregiver burden was mainly explained by the affected young person's unmet need. Domains of unmet need most associated with caregiver burden in both groups included depression/anxiety and inappropriate behavior. Specific to ASD were significant associations between burden and unmet needs in domains such as social relationships and major mental health problems. Adolescence and young adulthood are associated with high levels of caregiver burden in both disorders; in ASD, the level is comparable to that reported by persons caring for individuals with a brain injury. Interventions are required to reduce caregiver burden in this population.
机译：越来越多的人认识到自闭症谱系障碍（ASD）和注意力不足/多动症（ADHD）与巨大的成本和负担相关。但是，关于其影响的研究主要集中在幼儿的照顾者上。很少有研究检查了儿童过渡到青春期和成年后的照料者负担，也没有人将ASD的影响与其他神经发育障碍（例如ADHD）进行比较。我们对英国的192个家庭进行了观察性研究，这些家庭照顾有儿童期ASD或ADHD（分别为n = 101和n = 91）的年轻人（14至24岁）。使用改良的压力评估模型来调查照顾者负担与家庭背景（父母教育），主要压力源（症状），主要评估（需要）和资源（服务使用）之间的关系。两种疾病均与高水平的照料者负担相关，但在ASD中则明显更高。在这两个群体中，照顾者的负担主要是由受影响的年轻人未满足的需求来解释的。两组中未满足的需求与护理人员负担最相关的领域包括抑郁/焦虑和不当行为。 ASD特有的是社会关系和重大精神健康问题等领域中负担与未满足需求之间的重要关联。在这两种疾病中，青春期和成年期都与高水平的照料者负担有关。在ASD中，该水平可与照顾脑损伤患者的水平相媲美。需要采取干预措施以减轻该人群的照料者负担。

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