...
  • 主题
高级搜索  >
历史搜索 清空历史
首页> 外文期刊>Pediatrics: Official Publication of the American Academy of Pediatrics >Caregiver Experience in Pediatric Dialysis
【24h】

Caregiver Experience in Pediatric Dialysis

机译：护理人员在儿科透析体验

获取原文
获取原文并翻译 | 示例
           
页面导航
  • 摘要
  • 著录项
  • 相似文献
  • 相关主题

摘要

BACKGROUND AND OBJECTIVES: Pediatric dialysis is thought to be burdensome on caregivers given their need to assume dual responsibilities of parental and medical management of their child's chronic illness. In this study, we seek to describe the experience of parental caregivers of children receiving chronic dialysis for end-stage kidney disease. METHODS: We performed semistructured interviews of primary caregivers of children with end-stage kidney disease receiving chronic peritoneal dialysis or hemodialysis for at least 8 weeks from March 2016 to April 2017 at 3 pediatric dialysis centers in the United States. We performed a thematic analysis to inductively derive and identify themes and subthemes related to positive and negative caregiver experiences. RESULTS: Thirty-five caregivers completed interviews. Four major themes were identified, each with several subthemes: (1) caregiver medicalization (subthemes: diagnosis and initiation, disease management, and the future), (2) emotional adjustment (initial and/or acute phase, acceptance, personal growth, and medical stress and psychological burden), (3) pragmatic adaptation (disruption, adaptation of life goals and/or sense of self, and financial impact), and (4) social adjustment (relationship opportunity, relationship risk, advocacy, family functioning, and intimate relationships). These themes and subthemes reflected a broad range of experiences from positive to severely burdensome. CONCLUSIONS: Caregivers of patients on dialysis report a broad range of positive and burdensome experiences. These results reveal a need for continued advocacy to support families with a child on dialysis and can be used to develop targeted measures to study and improve caregiver experience in this population.
机译：背景和目标：鉴于他们需要承担其孩子的慢性疾病的父母和医学管理的双重责任，被认为是护理人员的繁重。在这项研究中，我们寻求描述接受慢性透析的儿童治疗患儿的父母的肾脏疾病的经验。方法：在2016年3月至2017年3月，在2016年3月至2017年4月，在2016年3月至2017年4月，对患有慢性腹膜透析或血液透析的血液透析或血液透析的血液透析，对慢性腹膜透析或血液透析的血液透析，对慢性腹膜透析或血液透析的初级护理人员进行了半系统。我们对与积极和消极的护理人员经验相关的主题分析进行了主题分析，并识别有关的主题和次主体。结果：三十五名护理人员完成了采访。确定了四个主要主题，每个主要主题有几个次节：（1）护理人员医疗（次节：诊断和启动，疾病管理，以及未来），（2）情绪调整（初始和/或急性期，接受，个人成长，和医疗压力和心理负担），（3）务实适应（中断，适应生命目标和/或自我意识，以及财务影响），（4）社会调整（关系机会，关系风险，宣传，家庭运作，以及亲密关系）。这些主题和次主题反映了广泛的经验，从积极造成严重繁重。结论：透析患者的护理人员报告了广泛的积极和繁琐的体验。这些结果揭示了需要持续倡导与儿童透析的家庭，并可用于制定有针对性的措施，以研究和改善该人群的护理人员经验。

著录项

相似文献

  • 外文文献
  • 中文文献
  • 专利
获取原文

客服邮箱：kefu@zhangqiaokeyan.com

京公网安备：11010802029741号 ICP备案号：京ICP备15016152号-6 六维联合信息科技 (北京) 有限公司©版权所有

  • 客服微信

  • 服务号