首页> 外文期刊>American journal on intellectual and developmental disabilities: AJIDD >Attendance at Fragile X Specialty Clinics: Facilitators and Barriers
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Attendance at Fragile X Specialty Clinics: Facilitators and Barriers

机译:出席脆弱的X特色诊所:促进者和障碍

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The objectives were to describe the demographic characteristics of children with Fragile X syndrome (FXS) and to determine predictors of attendance at Fragile X (FX) clinics. Findings from the Community Support Network (CSN) and Our Fragile X World (OFXW) samples showed that children who attended FX Clinics were mostly male, high-school aged or younger, and white, non-Hispanic. Using logistic regression models, awareness about FX Clinic services, guardian education, and income (CSN), and child age, family income, and total number of co-occurring conditions (OFXW) were predictors of clinic attendance. Demographic and child characteristics accounted for a large portion of the explained variance. Importantly, symptom severity and parent knowledge about services were independent predictors beyond the demographic characteristics of families.
机译:目标是描述脆弱X综合征(FXS)的儿童的人口特征,并确定脆弱X(FX)诊所的出勤预测因子。 来自社区支持网络(CSN)和我们脆弱的X世界(OFXW)样品的调查结果表明,出席外汇诊所的儿童主要是男性,高中年龄或较小的,白色,非西班牙裔。 使用Logistic回归模型,对FX诊所服务,监护教育和收入(CSN)以及儿童年龄,家庭收入以及共同发生条件(OFXW)的总数的认识是临床考勤的预测因素。 人口和儿童特征占解释方差的大部分。 重要的是,症状严重程度和母公司的服务知识是超越家庭人口统计特征的独立预测因素。

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