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Consensus Statement of the International Summit on Intellectual Disability and Dementia Related to Nomenclature

机译：智力残疾倡会和痴呆症与命名的痴呆症的共识声明

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A working group of the 2016 International Summit on Intellectual Disability and Dementia was charged to examine the terminology used to define and report on dementia in publications related to intellectual disability (ID). A review of related publications showed mixed uses of terms associated with dementia or causative diseases. As with dementia research in the non-ID population, language related to dementia in the ID field often lacks precision and could lead to a misunderstanding of the condition(s) under discussion, an increasingly crucial issue given the increased global attention dementia is receiving in that field. Most articles related to ID and dementia reporting clinical or medical research generally provide a structured definition of dementia or related terms; social care articles tend toward term use without definition. Toward terminology standardization within studies/reports on dementia and ID, the Summit recommended that a consistent approach is taken that ensures (a) growing familiarity with dementia-related diagnostic, condition-specific, and social care terms (as identified in the working group's report); (b) creating a guidance document on accurately defining and presenting information about individuals or groups referenced; and (c) using definitions and data, such as subjects' ages, sex, level of ID, residential situation, basis for dementia diagnosis, presence of Down syndrome (or other risk conditions), years from diagnosis, and if available, scores on objective measures of changing function, in reports on neuropathologies or cognitive decline or impairment.
机译：2016年国际知识分子和痴呆症博士学位的一项工作组被指控审查用于定义和报告与知识分子残疾（ID）相关出版物的妊娠和报告痴呆症的术语。对相关出版物的审查显示与痴呆或致病疾病相关的术语的混合用途。与痴呆症研究中的痴呆症研究中的痴呆症研究，身份证领域中的痴呆症有关的语言往往缺乏精确度，并且可能导致对讨论的情况误解，这是一项日益关键的问题，因为增加了全球关注痴呆症正在接受的增加那个领域。大多数与ID和痴呆报告临床或医学研究有关的大多数文章通常提供痴呆或相关术语的结构化定义;社会护理文章倾向于没有定义的术语使用。峰会在痴呆症和ID上的研究/报告中，峰会建议采取一致的方法，确保（a）熟悉痴呆症相关的诊断，条件和社会护理术语（如工作组报告所示）; （b）在准确地确定和呈现有关所引用的个人或团体的信息，创建指导文件; （c）使用定义和数据，例如受试者年龄，性别，ID水平，住宅情况，痴呆症诊断的基础，抑制综合征（或其他风险条件），诊断年份，如果有的话，评分改变功能的客观措施，报告神经病理学或认知衰退或减值报告。

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