首页> 外文期刊>American journal of medical genetics, Part A >A group of Brazilian Turner syndrome patients: Better quality of life than the control group
【24h】

A group of Brazilian Turner syndrome patients: Better quality of life than the control group

机译:一群巴西特纳综合征患者:更好的生活质量比对照组

获取原文
获取原文并翻译 | 示例
           

摘要

Current literature presents no consensus regarding which aspects influence health-related quality of life (HRQoL) of women with Turner syndrome (TS). The objective of the present study was to compare HRQoL in the TS and control group, using components and domains of the Medical Outcomes Study 36-ltem Short Form Health Survey (SF-36). Observational, descriptive, and cross-sectional study with 44 women with TS aged between 18 and 30 years (TS group) and 44 healthy women of the same age which were sisters, relatives, or friends of the TS group (control group). A registration form and the SF-36 questionnaire were used to analyze HRQoL in TS in relation to the control group. The TS group presented better scores in the mental component summary and in the role physical, bodily pain, general health, social function, and role emotional domains compared to the control group. This study presented some unexpected results, different from those found in the current literature, showing the possibility of TS patients presenting better coping strategies. It is necessary to develop a specific questionnaire to assess QoL in TS and analyze in great detail which factors may influence the HRQoL of these patients.
机译:目前的文献没有关于哪些方面影响有关具有特纳综合征(TS)的妇女的健康相关生活质量(HRQOL)。本研究的目的是使用医疗结果的组分和域进行比较TS和对照组的HRQOL,研究36- LTEM短型健康调查(SF-36)。观察,描述性和横断面研究,44名妇女在18至30岁之间(TS组)和44名同龄44名健康妇女,姐妹,亲属或TS组(对照组)。注册表和SF-36调查问卷用于分析与对照组有关TS的HRQOL。与对照组相比,TS集团在心理成分摘要和身体疼痛,一般健康,社会功能和情绪情绪域中提出了更好的成绩。这项研究提出了一些意想不到的结果,与当前文献中的那些不同,表明TS患者提供更好的应对策略的可能性。有必要制定特定的问卷,以评估TS的QOL,并详细分析哪些因素可能影响这些患者的HRQOL。

著录项

相似文献

  • 外文文献
  • 中文文献
  • 专利
获取原文

客服邮箱:kefu@zhangqiaokeyan.com

京公网安备:11010802029741号 ICP备案号:京ICP备15016152号-6 六维联合信息科技 (北京) 有限公司©版权所有
  • 客服微信

  • 服务号