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首页> 外文期刊>Issues in comprehensive pediatric nursing. >Parents HRQOL, Their Satisfaction with Care, and Children Over the Age of Eight's Experiences of Family Support Two Years Subsequent to the Child's Diagnosis with Type 1 Diabetes
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Parents HRQOL, Their Satisfaction with Care, and Children Over the Age of Eight's Experiences of Family Support Two Years Subsequent to the Child's Diagnosis with Type 1 Diabetes

机译：父母HRQOL，他们对小心的满意度，以及八岁的孩子们的家庭支持经验两年后，孩子诊断为1型糖尿病

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Parents react differently after their child is diagnosed with type 1 diabetes, both at onset and longitudinally. The aim of this study was to describe and compare the disease impact on parents, in terms of health-related quality of life (HRQOL), parents' satisfaction with the care received, and the child's experience of diabetes-specific family support 2 years after the child's diagnosis. A further aim was to compare mothers' and fathers' HRQOL and satisfaction with care over time from the child's diagnosis to follow-up 2 years later. A total of 43 children and 114 parents participated. Parents independently filled in the PedsQL Family Impact Module and the PedsQL Health Care Satisfaction Generic Module and children over the age of 8 filled in the Diabetes Family Behavior Scale?. The results showed that mothers reported a lower level of emotional functioning than fathers (p = 0.011) and a higher degree of worry 2 years after the child's diagnosis (p = 0.035). Parents reported an overall high satisfaction with the child's healthcare, but mothers reported lower satisfaction concerning the satisfaction of their emotional needs (p = 0.012). There was no correlation between how children experienced parental support and their HbA1c value. However, one outlier emerged and when this was removed a significant correlation was found between HbA1c and a warmth-caring support. When a child is diagnosed with type 1 diabetes it is important to take into consideration how parents are affected longitudinally. Furthermore, it is also important to further explore what children over the age of 8 estimate as important with regard to their family support.
机译：父母在患有1型糖尿病患者患有1型糖尿病后，父母在发病和纵向诊断后反应。本研究的目的是描述和比较对父母的疾病影响，就健康有关的生活质量（HRQOL），父母对收到的护理人员的满意度，以及儿童特定于糖尿病特定家庭的经验2年后孩子的诊断。进一步的目标是将母亲的“父亲的HRQOL和满意度与儿童的诊断随访时间相比，2年后。共有43名儿童和114名父母参加。父母独立填写在Pedsql家族影响模块和Pedsql医疗保健满意度通用模块和儿童8岁以上的糖尿病家庭行为规模结果表明，母亲报告了比父亲（P = 0.011）的较低的情绪运作，并且在儿童诊断后2年的担忧更高（P = 0.035）。父母向孩子的医疗保健报告了整体良好的满足感，但母亲报告了对他们的情绪需求满意度的满意度降低了（P = 0.012）。儿童如何经历父母支持与其HBA1c价值之间没有相关性。然而，出现了一个异常，并且当其中取出了一个显着的相关性，并且在HBA1C和温暖的支持之间发现了显着的相关性。当孩子被诊断出患有1型糖尿病时，重要的是考虑父母如何纵向影响。此外，进一步探索8岁以上的儿童在其家庭支持方面的重要性也很重要。

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