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Children's disengagement from cancer care and treatment on the ward: an undesirable social tactic in the long term

机译:儿童脱离癌症护理和病房的治疗:长期不受欢迎的社会策略

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This anthropological study explores children's non‐social reactions during the active treatment period, the on‐treatment, in a paediatric oncology ward in a Danish university hospital. It is argued that, although some children's non‐social reactions is a tactical disengagement to manage the on‐treatment situation, such non‐social tactics might ultimately prove an undesirable strategy with negative long‐term social consequences for social survivorship. Data were generated over 7?months of ethnographic fieldwork between May 2011 and January 2013, using qualitative methods such as participant observation and open‐ended interviewing. Fifty children of both sexes between 4 and 15?years, their families and hospital staff participated in the study. These data formed the basis for the study. The findings show that children's response to care challenges, including exhaustion from care management, exposure from being in a public space, and the open‐ended duration of treatment, configure in tactic forms that we term social disengagement. It is suggested that such tactical social disengagement might expand into long‐term social patterns, and, as such, change from an alleviating tactic to a socially isolating and damaging tactic for survivors of cancer in childhood.
机译:该人类学研究探讨了儿童在丹麦大学医院儿科肿瘤病房中的活跃治疗期间的非社会反应。有人认为,虽然有些孩子的非社会反应是管理治疗局面的战术脱离,但这种非社会策略可能最终证明了一个不良的战略,对社会生存的负面的长期社会后果。数据是在2011年5月和2013年5月之间的7个月内容的7?几个月的民族景观中,采用了参与者观察和开放式面试等定性方法。两性的五十个儿童在4到15之间?年,他们的家庭和医院工作人员参加了这项研究。这些数据形成了研究的基础。调查结果表明,儿童对护理挑战的回应,包括从护理管理中的疲惫,避免在公共场所,以及开放的待遇持续时间,以社交脱离的策略形式配置。建议这种战术社会脱离可能扩展到长期的社会模式,因此,从减轻策略对儿童时期癌症幸存者的缓解和破坏性策略的改变。

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