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首页> 外文期刊>European journal of pediatrics >Health-related quality of life in Spanish coeliac children using the generic KIDSCREEN-52 questionnaire
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Health-related quality of life in Spanish coeliac children using the generic KIDSCREEN-52 questionnaire

机译：西班牙乳糜泻儿童的健康相关生活质量使用通用童新童新问卷

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摘要

The aim of this study is to assess the impact of coeliac disease (CD) on health-related quality of life (HRQOL) using the generic KIDSCREEN-52 questionnaire in a group of Spanish children aged 8-18 years and their parents. For this cross-sectional study, coeliac children in the targeted age range, who are members of the Madrid Coeliac Association (MCA), were invited to participate. The Spanish version of the generic KIDSCREEN-52 questionnaire was administered via e-mail. Scores (on a scale from 1 to 100) were expressed as the mean and standard deviation (SD). Demographic and clinical variables related to HRQOL were also assessed. The questionnaire was completed by 434 children and/or their parents. Respondents gave scores of over 50 to seven quality of life domains. Mean scores were significantly higher in children than in their parents for six out of ten domains. In contrast, parents awarded significantly higher scores to the "social support and peers" domain than children did. Significantly lower QOL scores were reported by girls, children aged 16-18 years, children older than 7 years at the time of CD diagnosis, and respondents who did not adhere to the prescribed diet or had difficulty in doing so.
机译：本研究的目的是利用一群8-18岁及其父母的西班牙儿童的通用童新童新问卷评估腹腔病（CD）对健康相关生活质量（HRQOL）的影响。对于这种横断面研究，塞利克儿童在目标年龄范围内，被邀请参加马德里塞氏乳糜泻（MCA）的成员。通过电子邮件管理的通用Kidscreen-52问卷的西班牙版本。评分（从1到100的等级）表示为平均值和标准偏差（SD）。还评估了与HRQOL相关的人口统计和临床变量。调查问卷由434名儿童和/或其父母完成。受访者给出了50多到7种生活领域的分数。儿童的平均分子明显高于10个域名的父母。相比之下，父母荣获比儿童所做的“社会支持和同龄人”的分数明显更高。女孩们报道了QoL分数明显较低，16-18岁，儿童在CD诊断时7年龄，儿童7年，以及没有遵守规定的饮食或难以这样做的受访者。

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