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首页> 外文期刊>European journal of human genetics: EJHG >Interpretations of autonomous decision-making in antenatal genetic screening among women in China, Hong Kong and Pakistan
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Interpretations of autonomous decision-making in antenatal genetic screening among women in China, Hong Kong and Pakistan

机译：中国，香港和巴基斯坦妇女产前遗传筛查的自主决策解读

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摘要

The concept of informed choice for antenatal screening consists of Western ideologies, encapsulating individualistic approaches, and may be valued differently by people from countries with more collectivist cultures. This study aimed to explore perceptions of informed choice in antenatal screening in women from China, Hong Kong and Pakistan. A Q-methodology study was conducted during June 2016 to February 2017, in China (Shanghai and Duyun), Hong Kong and Pakistan (Lahore). A total of 299 women rank ordered 41 statements. Following by-person factor analysis, five distinct viewpoints were identified: choice as a maternal responsibility entrusted to doctors; choice as a shared decision led by the mother; choice as a shared decision led by the partner; choice as a responsibility delegated to the partner and doctors; and choice within a religious discourse. The findings highlight ethical dilemmas for healthcare professionals in facilitating informed choice for antenatal screening where policy and practice guidelines adapt predominantly individualistic approaches. Women's preferences for decision-making with health professionals and/or their partner, with minimal emphasis on individual rights, suggest the need for clarification of the role of health professionals in supporting and facilitating decision-making to enhance women's autonomy. Policy and practice guidelines need to be (re)framed to facilitate decision-making processes for antenatal screening using relational approaches to autonomy.
机译：天然筛查的知情选择的概念由西意识形态组成，封装个人态度，可能由来自更多集体文化的国家的人不同。本研究旨在探讨中国，香港和巴基斯坦妇女的产前选择的知情选择的看法。 2016年6月至2017年2月，在中国（上海和多云），香港和巴基斯坦（拉合尔）于2017年6月进行了Q方法研究。共有299名妇女排序已订购41个陈述。遵循私人因子分析，确定了五个不同的观点：选择作为委托医生的母体责任;选择作为母亲领导的共同决定;选择作为合作伙伴领导的共同决定;选择作为授予伴侣和医生的责任;在宗教话语中选择。调查结果突出了医疗专业人士的道德困境，以便在政策和实践指导方面适应各种各样的个人主义方法。妇女与卫生专业人士和/或其合作伙伴决策的偏好，并强调个人权利，表明需要澄清卫生专业人员在支持和促进妇女自主权的决策方面的作用。政策和实践指导方针需要（重新）框架以促进使用关系的自主方法的产前筛查的决策过程。

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