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The role of responsibility in oncological emergency telephone calls

机译：责任在肿瘤急救电话中的作用

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Background: Patients and their caregivers are expected to take joint responsibility for reporting symptoms and seeking medical assistance, for example, by calling oncology emergency telephones or other helplines during a cancer trajectory. Research objective: The aim was to explore the meaning of responsibility as it appeared in patients' or caregivers' experiences of calling an oncological emergency telephone. Design, participants and context: Inspired by qualitative description and qualitative content analysis, a secondary analysis of data from interviews with 12 participants calling the oncological emergency telephone at a Danish university hospital was performed. Ethical considerations: The project observes demands for safekeeping data and all regulations concerning research ethics in agreement with the Nordic Nurses Federation and the Danish Health Act. Findings: Two main themes emerged: (1) to act responsibly as a patient or caregiver was to 'be watchful and alert', 'report symptoms the right way' and 'do crosschecking' and (2) to deal with the burden of responsibility was to 'feel safe when dealing with the burden of responsibility' and 'be relieved from the burden of responsibility'. Discussion: Too much responsibility and a potential imbalance between healthcare professionals' expectations and callers' knowledge and capacity to act may place additional burdens on the callers, which may be eased by person-centred care. Conclusion: The meaning of responsibility appeared in the participants' capacity to act, where they observed, assessed and reported symptoms and controlled prescribed treatments as well as shared or handed over the responsibility to the healthcare providers. Thus, the analysis provided essential knowledge for healthcare professionals on how patients and caregivers handle this responsibility when faced with a cancer disease that is treated on an outpatient basis.
机译：背景：患者及其护理人员预计会对报告症状进行共同责任，例如，通过在癌症轨迹期间呼叫肿瘤应急电话或其他透明仪来寻求医疗援助。研究目标：目的是探讨责任的意义，因为它在患者或照顾者呼吁肿瘤急救电话的经历。设计，参与者和背景：受到定性描述和定性内容分析的启发，对12名参与者呼吁丹麦大学医院进行肿瘤急救电话的访谈中的数据的次要分析。道德考虑因素：该项目观察了对北欧护士联合会和丹麦卫生法的谈判的保管数据和关于研究伦理的所有条例。调查结果：出现了两个主要主题：（1）负责任地行事，因为患者或照顾者是“注意和警惕”，“报告症状”和“交叉检查”和（2）处理责任负担在处理责任负担和“责任负担”中，“在处理责任的负担时”感到安全“。讨论：医疗保健专业人员的期望和呼叫者的潜在不平衡可能会对呼叫者进行额外负担，这可能是以人为本的护理而放缓。结论：责任的意义出现在参与者的行动能力，观察，评估和报告的症状和控制规定的治疗以及对医疗保健提供者的责任分享或交给责任。因此，分析为医疗保健专业人员提供了关于患者和护理人员在面对外科治疗的癌症疾病时处理这一责任的基本知识。

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