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The Shifting Aesthetics of Expertise in the Sharing Economy of Scientific Medicine

机译:科学医学分享经济中的改变美学

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摘要

The deficit model of science communication assumes that the creation and dissemination of knowledge is limited to researchers with formal credentials. Recent challenges to this model have emerged among “e-patients” who develop extensive online activist communities, demand access to their own health data, conduct crowd-sourced experiments, and “hack” health problems that traditional medical experts have failed to solve. This article explores the aesthetics of medical media that enact the transition from a deficit model to a patient-driven model of visual representation and health communication. I present a framework for understanding the role of film and video in patient movements by analyzing the historical transition from researchers filming patients as nameless, voiceless human research subjects to patients recording their own health narratives through activist cinematography. By comparing several approaches to patient-centered video, I argue that imperfect production aesthetics play a critically important role in establishing the credibility of health communications.
机译:科学传播的赤字模型假定知识的创建和传播仅限于具有正式证书的研究人员。最近对这一模式的挑战在开发广泛的在线活动家社区,需要获得自己的健康数据,行动人群的实验和“黑客”健康问题,即传统医学专家未能解决的“黑客”的问题。本文探讨了医疗媒体的美学,以缺陷模型向视觉表示和健康通信的患者驱动模型制定过渡。我提出了一个框架,了解电影和视频在患者运动中的作用,通过分析从研究人员拍摄患者的历史过渡,作为无名,无声的人类研究受患者通过活动性电影记录自己的健康叙事。通过将若干方法与患者为中心的视频进行比较,我认为不完美的生产美学在建立健康通信的可信度方面发挥着批判性重要作用。

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