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Transitions to adulthood: self‐governance and disciplining in the making of patient citizens

机译:转型至成年期:在患者公民制作中的自治和纪律

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Abstract Young people develop new behaviours and redefine their identities during health transitions when they move from paediatric to adult healthcare environments. Their identities help to guide their health‐related actions in response to life changes. Young people's health is increasingly recognised as important, yet we lack understanding of how health transitions shape identities and how they relate to other transitions to adulthood. We conducted a longitudinal interview study with young people with sickle cell disease to explore how young people define new identities as they transition to adulthood. We show how ‘disciplining at a distance’ via healthcare self‐management discourses and neoliberal norms governing adolescence play out in the tensions participants encounter when they are crafting new identities. Health transitions involve struggles to negotiate competing demands for self‐discipline. It is crucial to create enabling spaces for young people to protect their health while still developing identities that help them achieve life goals.
机译:摘要年轻人在卫生转型期间从儿科转移到成人医疗保健环境时,在健康过渡期间重新定义他们的身份。他们的身份有助于指导他们的健康相关行动以应对生活变化。年轻人的健康越来越重要,但我们缺乏了解卫生转型方式如何形状,以及它们如何与其他转型到成年期。我们与镰状细胞疾病的年轻人进行了纵向面试学习,探索年轻人如何定义新的身份,因为他们向成年期过渡。我们展示了通过医疗保健自我管理致法和新自由主义规范在紧张局参与者遭遇新身份时遇到的“距离”的“纪律”。健康过渡涉及努力谈判对自律的竞争需求。为年轻人创造支持的空间是至关重要的,以保护他们的健康,同时仍在开发帮助他们实现生命目标的身份。

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