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Feeling lucky: hierarchies of suffering and stories of endometrial cancer in a Danish context

机译:感到幸运:在丹麦语境中的子宫内膜癌的痛苦和故事的层次结构

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摘要

Illness stories are a prime analytical way of understanding patient perspectives on cancer. Nevertheless, limited studies have focused on stories of endometrial cancer. An ethnographic study including participant observation and interviews among 18 Danish women with endometrial cancer was conducted to examine prevalent stories and the ways the women responded to them. In this article, the analysis focuses on two exemplary cases, which present a line of issues related to the kinds of experiences that suffering includes. Findings illustrate that feelings of luck were central to the experience of being diagnosed, treated and cured, which was related to the way health professionals framed endometrial cancer as favourable through notions of curable/incurable, trivial and gentle/invasive and brutal, and aggressive/non-aggressive. Drawing upon the concept of a 'hierarchy of suffering', we exemplify how women tended to scale own experiences of suffering against others', leading some to believe they were not in a legitimate position to draw attention to themselves nor seek help and support, despite adverse physical, psychosocial effects. Thus, feelings of being lucky were intertwined with a sense of ambivalence. We conclude by discussing how suffering arises within a moral context, suggesting that the ways we speak of cancer may make some experiences unspeakable. This calls for increased clinical attention to more diverse narratives of cancer.
机译:疾病故事是一种理解患者对癌症的透视的主要分析方式。尽管如此,有限的研究专注于子宫内膜癌的故事。在包括参与者观察和面试中的民族志学习,在18名丹麦女性中进行了子宫内膜癌,以研究普遍存在的故事,并且妇女对其作出反应的方式。在本文中,该分析侧重于两个示例性案例,该案例呈现出与痛苦的各种经验相关的问题。调查结果说明了运气的感情是被诊断,治疗和治疗的经验的核心,这与卫生专业人员涉及到子宫内膜癌的方式,通过可固化/可治区,琐碎,柔和/侵蚀性和残酷和侵略性/侵略性/侵略性/非侵略性。借鉴“痛苦等级”的概念,我们举例说明了女性如何倾向于规模自己的痛苦的经验,这导致一些人不相信他们不受合理的立场,以吸引注意力,尽管如此不良身体,心理社会效应。因此,幸运的感受与矛盾感相同。我们通过讨论在道德背景下出现痛苦的痛苦,建议我们谈论癌症的方式可能会使一些经历无法形容。这要求增加临床关注更加多样化的癌症叙述。

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