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Dualities of dementia illness narratives and their role in a narrative economy

机译：痴呆症疾病叙事的二元性及其在叙事经济中的作用

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Abstract The concept of ‘narrative economies’ has recently been proposed as a set of exchange relationships that, through biography and story‐telling, facilitate access to resources and act as a source of value. We utilise this concept to inform our analysis of 18 qualitative interviews with five people with dementia and four informal carers. Our participants are members of a pre‐existing group of dementia advocates, representing the voices of those living with the condition. There are a growing number of people in the early stages of dementia – like our participants – being called upon to account for their experience, as a means of developing a politicised ‘collective illness identity’. These interviews present an opportunity to study a group of people who are actively involved in speaking as, and for, people with dementia. Four themes emerged from the data: becoming a voice of or for people with dementia; biographical reinforcement; responsibilisation; and resistance. These themes illustrate the ways in which people with dementia participate in their own identity construction and, as representatives of those living with dementia, they also illustrate the ways in which illness narratives produce material and symbolic value.
机译：摘要“叙事经济体”的概念最近被提议作为一系列交换关系，通过传记和讲故事，促进资源获得并作为价值的来源。我们利用了这一概念，以通知我们对具有痴呆症和四名非正规护理人员的五个人的定性访谈。我们的参与者是预先存在的痴呆症倡导者群体的成员，代表了这种情况的人的声音。在痴呆症的早期阶段有一个越来越多的人 - 就像我们的参与者一样 - 被要求考虑他们的经验，作为制定政治化的“集体疾病认同”的手段。这些访谈提供了一个有机会研究一群积极参与痴呆症的人的人。从数据中出现的四个主题：成为痴呆症的人或痴呆的人;传记强化;责任;和抗性。这些主题说明了痴呆症人民参与自己的身份建设的方式，作为患有痴呆症的人的代表，他们还说明了疾病叙事生产材料和象征价值的方式。

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