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首页> 外文期刊>Supportive care in cancer: official journal of the Multinational Association of Supportive Care in Cancer >Informal caregiver quality of life in a palliative oncology population
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Informal caregiver quality of life in a palliative oncology population

机译：非正式护理人员在姑息治疗中的生活质量

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摘要

Purpose Many patients with advanced cancer receive primary supports from informal caregivers (IC). As patient health deteriorates, IC assume increasing responsibility, often accompanied by distress. We investigated the quality of life (QOL) of IC of patients referred to a palliative radiotherapy (PRT) program. Methods IC accompanying patients to a dedicated PRT clinic completed a survey based on the validated Caregiver Quality of Life Index-Cancer (CQOLC). Demographics, burden, and engagement in support services were evaluated. Summary statistics were calculated, and parameters were assessed for association with CQOLC scores by a generalized linear model. Results Two hundred one surveys were analyzed representing 197 unique patients. The mean age was 68.3 years, with predominantly lung (25.0%) and prostate (19.3%) malignancies. 24.4% had been in hospital/long-term care within the previous 7 days. IC were 60.8% female, and 60.6% were the patient's spouse. 69.5% lived with the patient and 38.3% were additionally employed. IC spent a daily mean of 6.6 h (SD 7) assisting with instrumental (72.5%) and basic (37.5%) activities of daily living. Mean CQOLC score was 82.1/140 (SD 20). 63.8% of IC had previously accessed support service(s), most commonly home care (37.2%) and pharmacy (29.1%). 55.9% indicated interest in services not yet accessed. Multivariate analysis revealed additional employment, cohabitation, poor patient performance status, and interest in accessing more support services significantly correlated with higher IC burden. Conclusions Employing the CQOLC to screen IC of patients referred to a PRT program permits early identification of vulnerable IC to facilitate linkage with appropriate supports.
机译：目的，许多先进的癌症患者从非正式护理人员（IC）接受主要支持。由于患者健康恶化，IC承担越来越责任，常常伴随着痛苦。我们调查了引用姑息放疗（PRT）计划的患者的IC的生活质量（QOL）。方法伴随着患者对专业的PRT诊所的IC完成了基于验证的护理人员质量指数 - 癌症（CQOLC）的调查。评估人口统计，负担和参与支持服务。计算概述统计数据，通过广义线性模型评估参数与CQOLC分数相关联。结果分析了二百个调查，代表197个独特的患者。平均年龄为68.3岁，主要是肺（25.0％）和前列腺（19.3％）恶性肿瘤。 24.4％在前7天内一直在医院/长期护理。 IC为60.8％的女性，60.6％是患者的配偶。 69.5％与患者一起生活，另外使用38.3％。 IC每天花费6.6小时（SD 7），协助有乐器（72.5％）和基本生活（37.5％）的日常生活活动。平均CQOLC得分为82.1 / 140（SD 20）。 63.8％的IC先前已获得支持服务，最常见的家庭护理（37.2％）和药房（29.1％）。 55.9％表示尚未获得的服务兴趣。多变量分析揭示了额外的就业，同居，患者绩效状况，以及访问更多支持服务的兴趣与更高的IC负担显着相关。结论采用CQOLC对PRT计划的患者筛选IC允许早期识别弱势IC，以促进适当的支持。

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    Duimering Adele; Turner Jill; Chu Karen; Huang Fleur; Severin Diane; Ghosh Sunita; Yee Don; Wiebe Ericka; Usmani Nawaid; Gabos Zsolt; Patel Samir; Danielson Brita; Amanie John; Roa Wilson; Fairchild Alysa;

  • 作者单位

    Univ Alberta Cross Canc Inst Dept Radiat Oncology 11560 Univ Ave Edmonton AB T6G 1Z2 Canada;

    Univ Alberta Cross Canc Inst Dept Psychosocial &

    Spiritual Resources Edmonton AB Canada;

    Univ Alberta Cross Canc Inst Dept Radiat Oncology 11560 Univ Ave Edmonton AB T6G 1Z2 Canada;

    Univ Alberta Cross Canc Inst Dept Radiat Oncology 11560 Univ Ave Edmonton AB T6G 1Z2 Canada;

    Univ Alberta Cross Canc Inst Dept Radiat Oncology 11560 Univ Ave Edmonton AB T6G 1Z2 Canada;

    Univ Alberta Cross Canc Inst Dept Expt Oncology Edmonton AB Canada;

    Univ Alberta Cross Canc Inst Dept Radiat Oncology 11560 Univ Ave Edmonton AB T6G 1Z2 Canada;

    Univ Alberta Cross Canc Inst Dept Radiat Oncology 11560 Univ Ave Edmonton AB T6G 1Z2 Canada;

    Univ Alberta Cross Canc Inst Dept Radiat Oncology 11560 Univ Ave Edmonton AB T6G 1Z2 Canada;

    Univ Alberta Cross Canc Inst Dept Radiat Oncology 11560 Univ Ave Edmonton AB T6G 1Z2 Canada;

    Univ Alberta Cross Canc Inst Dept Radiat Oncology 11560 Univ Ave Edmonton AB T6G 1Z2 Canada;

    Univ Alberta Cross Canc Inst Dept Radiat Oncology 11560 Univ Ave Edmonton AB T6G 1Z2 Canada;

    Univ Alberta Cross Canc Inst Dept Radiat Oncology 11560 Univ Ave Edmonton AB T6G 1Z2 Canada;

    Univ Alberta Cross Canc Inst Dept Radiat Oncology 11560 Univ Ave Edmonton AB T6G 1Z2 Canada;

    Univ Alberta Cross Canc Inst Dept Radiat Oncology 11560 Univ Ave Edmonton AB T6G 1Z2 Canada;

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  • 原文格式 PDF
  • 正文语种 eng
  • 中图分类 护理学;
  • 关键词

    Informal caregiver; Quality of life; Caregiver burden; Palliative; Oncology; Radiotherapy;

    机译：非正式的照顾者;生活质量;照顾者负担;姑息类;肿瘤;放射治疗;

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